Jeanne, when I was the hospital I had a band around my waist like a steel band. After some time out of the hospital and for many years it has been a band of pain. No medication relieved it. It was especially bad when i laid on my back. Ken in N.M.
Date: Wed, 3 Dec 2008 18:18:58 -0800From: [EMAIL PROTECTED]: tmic-digest Digest V2008 #478To: [EMAIL PROTECTED] Message Attachment--tmic-digest Digest Volume 2008 : Issue 478 Today's Topics: [TMIC] memory, cognitive function, h [ Sharon M <[EMAIL PROTECTED]> ] Re: [TMIC] Too Cold [ "jrushton" <[EMAIL PROTECTED] ] [TMIC] RE: tmic-digest Digest V2008 [ marieke dufresne <[EMAIL PROTECTED] ] Re: [TMIC] memory, cognitive functio [ "jrushton" <[EMAIL PROTECTED] ] [TMIC] Adjustable Ankle Stabilizer f [ Todd Tarno <[EMAIL PROTECTED] ] Re: [TMIC] Adjustable Ankle Stabiliz [ "jrushton" <[EMAIL PROTECTED] ] Re: [TMIC] Too Cold [ "jrushton" <[EMAIL PROTECTED] ] Re: [TMIC] House [ "Grace M." <[EMAIL PROTECTED]> ] Re: [TMIC] Too Cold [ CANDIS KALLEY <[EMAIL PROTECTED] ]--Forwarded Message Attachment--Date: Wed, 3 Dec 2008 12:34:07 -0800From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] memory, cognitive function, helps I have memory loss along with cognitive dysfunction. It is better since I am currently able to be on much lower doses of my meds. (I am not anti-meds and will go back up when I must)The suggestion on group about doing crossword puzzles, etc. is excellent. My neuro told me that years ago. It's good to keep those brain cells working!I also have a really bad time with MS fatigue. My neuro has given me Ritalin to help with that fatigue and it helps me focus mentally.love you allSharon--Forwarded Message Attachment--Date: Thu, 4 Dec 2008 00:36:32 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Too Cold In response to: like acid on my skin These words are excite as it really feels. Todd in CC, TX Todd, those were the exact words I've used, also! The 'band' around my chest is like a piece of metal being squeezed tighter and tighter. I do have to say the new meds have really helped and the pain has decreased tremendously, thank God!! Jeanne in Dayton--Forwarded Message Attachment--Date: Wed, 3 Dec 2008 20:39:57 +0000From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] RE: tmic-digest Digest V2008 #477 Patti, I have it up on YouTube. It's Grace, who posts on this site. It's in 3 parts.http://www.youtube.com/watch?v=1QFmF6Bh1gghttp://www.youtube.com/watch?v=k1wdFSx_LOwhttp://www.youtube.com/watch?v=KA-tDVzp5QI --Forwarded Message Attachment--Date: Wed, 3 Dec 2008 12:57:59 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: RE: [TMIC] House Darn I missed it. There was a program on Discovery Health several months ago ( I think it was called Mystery Diagnosis) that featured a women who could not get out of bed. After many doctors and tests , they said it was TM, but this woman sometime later had Devics. Patti in Wisconsin From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, December 03, 2008 12:12 PMTo: tmicSubject: [TMIC] House Once again on "House" last night Transverse Myelitis was mentioned….even though House quickly ruled it out! Rob in New Jersey --Forwarded Message Attachment--Date: Wed, 3 Dec 2008 12:21:21 -0700From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] House Patti in Wisconsin That was our friend Grace in the Mystery Diagnosis. Heather in Calgary ----- Original Message ----- From: Patricia Cooley To: 'Robert Pall' ; 'tmic' Sent: Wednesday, December 03, 2008 11:57 AM Subject: RE: [TMIC] House Darn I missed it. There was a program on Discovery Health several months ago ( I think it was called Mystery Diagnosis) that featured a women who could not get out of bed. After many doctors and tests , they said it was TM, but this woman sometime later had Devics. Patti in Wisconsin From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Wednesday, December 03, 2008 12:12 PMTo: tmicSubject: [TMIC] House Once again on "House" last night Transverse Myelitis was mentioned….even though House quickly ruled it out! Rob in New Jersey --Forwarded Message Attachment--Date: Thu, 4 Dec 2008 00:41:03 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] memory, cognitive function, helps In response to: I have memory loss along with cognitive dysfunction. It is better since I am currently able to be on much lower doses of my meds. (I am not anti-meds and will go back up when I must)The suggestion on group about doing crossword puzzles, etc. is excellent. My neuro told me that years ago. It's good to keep those brain cells working!I also have a really bad time with MS fatigue. My neuro has given me Ritalin to help with that fatigue and it helps me focus mentally.love you allSharon Oh, Sharon, don't you just wish we all could find that one 'magic pill' that would help all of us TM'ers instead of something different for every single one of us?? ...and we love you, too Jeanne--Forwarded Message Attachment--Date: Wed, 3 Dec 2008 13:10:26 -0800From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] Adjustable Ankle Stabilizer for drop foot I saw a friend that had a light brake in his ankle wearing a adjustable ankle stabilizer that he got from Wal-Mart for about $12. I got one, it can be warn on the left or right ankle. It has really helped with my drop foot around the house. I want to be able to where all night long ( I started at 4 pm ), but my foot burned so bad that at 1 am, I had to take it off. There is a smaller one that might be better with shoes for $8. Has anyone else tried this & if so, how did it work for you? Hope everyone is having a BETTER day, Todd in CC, TX--Forwarded Message Attachment--Date: Thu, 4 Dec 2008 01:17:29 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Adjustable Ankle Stabilizer for drop foot In response to: I saw a friend that had a light brake in his ankle wearing a adjustable ankle stabilizer that he got from Wal-Mart for about $12. I got one, it can be warn on the left or right ankle. It has really helped with my drop foot around the house. I want to be able to where all night long ( I started at 4 pm ), but my foot burned so bad that at 1 am, I had to take it off. There is a smaller one that might be better with shoes for $8. Has anyone else tried this & if so, how did it work for you? Hope everyone is having a BETTER day, Todd in CC, TX What is this, Todd? Jeanne--Forwarded Message Attachment--Date: Thu, 4 Dec 2008 03:25:17 -0600From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Too Cold Hi, Randy, I've been taking Lyrica and Lexapro for quite awhile but just changed over to Cymbalta from the Lexapro and added Tramadol for pain and I can't tell you how much I've improved! I experimented with the timing on taking the Tramadol and only take two a day. You can take 1-2 up to 4 times a day (800mg total) and I'm only taking 1 in the AM and 1 at noon. The Cymbalta is an antidepressant but also seems to help with pain so that is why we changed over to that from the Lexapro. Gosh, I sure wish it could help someone else... Jeanne--Forwarded Message Attachment--Date: Wed, 3 Dec 2008 19:11:28 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Re: [TMIC] House Hi Patti, Marieke and Heather are right. That was me on the Discovery Channel. Recurrent LETM (Longitudinal Extensive Transverse Myelitis) is one of the symptoms of Devic's. It's pretty wicked. Gracie--Forwarded Message Attachment--Date: Wed, 3 Dec 2008 21:12:31 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Re: [TMIC] Too Cold Randy, Like Jeanne, I take Cymbalta and tramadol which does seem to help the pain. I have yet to find anything to completely wipe out the pain only things that make it "tolliable". I also wear a TENS machine on my back. I seem to have the worst pain during the cold, too hot, and humidity above 70% - the barometric pressure changes really do me in. Candy K.----- Original Message -----From: "jrushton" <[EMAIL PROTECTED]>To: "rj rankin" <[EMAIL PROTECTED]>, "TMIC" <tmic-list@eskimo.com>Sent: Thursday, December 4, 2008 4:25:17 AM (GMT-0500) America/New_YorkSubject: Re: [TMIC] Too Cold Hi, Randy, I've been taking Lyrica and Lexapro for quite awhile but just changed over to Cymbalta from the Lexapro and added Tramadol for pain and I can't tell you how much I've improved! I experimented with the timing on taking the Tramadol and only take two a day. You can take 1-2 up to 4 times a day (800mg total) and I'm only taking 1 in the AM and 1 at noon. The Cymbalta is an antidepressant but also seems to help with pain so that is why we changed over to that from the Lexapro. Gosh, I sure wish it could help someone else... Jeanne _________________________________________________________________ You live life online. So we put Windows on the web. http://clk.atdmt.com/MRT/go/127032869/direct/01/