Amanda wrote: I just want to be me again! I don't think there's anyone on this list that has not said those very same words over and over again. And we know the "you" is still "you" but what's on the outside has changed so much that we live in a totally different world now. Somedays we accept it better than others. But I have met the people who will never accept it and they are so unhappy, so miserable, so hateful of everyone. It's perfectly o.k to have a "pity party" every now and then, heaven knows we deserve it. There are so many frustrations, not the least of which is that we look o.k. and do you really want to know how I'm doing... "Sit down, this is going to take awhile." Yes, faith, family and friends have gotten me thru this... but only one day at a time. Blessings Trudy
On Sat, Mar 28, 2009 at 3:46 PM, Amanda Diskey <adis...@yahoo.com> wrote: > I just want to say that I am amazed at the amount of information I have > gotten from you all about stem cell research and use! I never expected such > a response, but I didn't know who else to ask. Of course my family and > friends just want me to get better, and I want to be normal again so bad I > would do anything to be that way. I miss playing with my kids, and cleaning > my house, and driving, and going to work, using my hands, not wearing > depends, and not being embarassed to go in public because of all of the > above. I just want to be me again! I was looking for an easy fix, even if it > cost 30,000, but thanks to this list I can make a more informed decision. > This list is a wonderful place to go for information or support. I don't > post a lot, but I always read the posts. Thank you all so much for > understanding when no one else does! > > AMANDA > > ------------------------------ > *From:* "tmic-digest-requ...@eskimo.com" <tmic-digest-requ...@eskimo.com> > *To:* tmic-dig...@eskimo.com > *Sent:* Thursday, March 26, 2009 10:03:50 PM > *Subject:* tmic-digest Digest V2009 #200 > > > > -----Inline Message Follows----- > > tmic-digest Digest Volume 2009 : Issue 200 > > Today's Topics: > Re: [TMIC] going to DC [ Lawrence King < > we4king...@verizon.n ] > Re: [TMIC] Embrionic Stem Cell Discu [ Lawrence King < > we4king...@verizon.n ] > > > -----Inline Message Follows----- > > Try to find the Albert Einstein memorial near the Vietnam Vets Memorial & > Constitution Ave. we wanted to get there but the bone chilling cold 9F. > got the better of us and we gave up on both. It's a site most tourists > miss and don't know about. and the museum of natural history is renovated > and wonderful... you can see the hope diamond. > I want to hear about it when you get back! > > On Mar 26, 2009, at 9:09 PM, ptpatti200...@aol.com wrote: > > Mindy the Artist > > Thanks Mindy > I found the info on the tourmobile before we decided that I needed some > sort of transport and I forgot about the wheelchair storage on the bus so > that link was helpful. . It will be perfect. I found that it was the only > bus through the cemetary - one of our desired stops. I know we are going > to use their two-day pass and see all of those sights. Did you have a > special spot that I might miis if I wasn't aware of it in advance? I'm > taking all the advice I can get. > Thanks > Patti - Michigan > > > -----Original Message----- > From: Lawrence King <we4king...@verizon.net> > To: tmic-list@eskimo.com > Cc: Lawrence King <we4king...@verizon.net> > Sent: Wed, 25 Mar 2009 2:38 pm > Subject: Re: [TMIC] going to DC > > Hi Patti, > We went to DC in Jan for my father-in-laws funeral at Arlington Natnl. > Cemetery and decided it was now or never to show the kids DC. What ever > your needs are I encourage you to take this tour bus: > http://www.tourmobile.com/disability.php and not the other ones. I > believe it cost us $32 per adult a day and we could get on and off at will. > I am walking wounded and would have been in agony if I had to walk from > monument to monument. I gave you the disability page so you can discuss > your needs with them. this is the only tour that has Natln. park > service affiliation (and the monuments are a natnl. park) and be happy > there are accommodations at all the monuments to allow full access > regardless of your level of ability. So enjoy yourself and wear an Obama > button (the workers will be friendlier) > > > > Mindy the Artist > > Jeanne > What a story! You couldn't make that up if you tried and I think it's > better (or worse) than anything I've seen on "House". Your miracle is that > you lived long enough to get to the right hospital and that they started you > on steroids. Thanks for sharing the details. > > You brought up the subject of maneuverability and I need help dealing with > it. > > I decided it was time to go to Washington DC - a long-time desire of my > hubby and myself. I always use a cane and have a wheelchair that I loaned > out a year ago, but could get back. I quit wearing my AFO after two years > because my feet burn and I prefer to wear shoes that I can take off every > time I sit down (even in public.) I looked pitiful sitting with my brace > beside me letting my feet breathe. So, I will need to use a walker and/or > be pushed in a wheelchair in Washington and am concerned about my hubby > lifting the chair in and out of our car. I have looked at 3 wheeled walkers > that would be easier to maneuver in crowds, 4 wheeled walkers of all kinds, > a 4 wheeled that turns into a transport chair ($400), and just a simple > transport chair itself A transport chair is a wheelchair for being pushed > in, with (4) ten-inch wheels instead of the large wheels on the back for > self-maneuvering. The transport chair ! is about 12 lbs. lighter than my > wheelchair and would be easier to get into my small car. The 4 wheeled > walker that turns into a wheelchair is $400 on-line. A transport wheelchair > is $200 at Walmart. I can buy a 3-wheeled or a 4-wheeled walker for $50 > each on Craigslist. What would YOU take to Washington DC? What will I > need? > How will I feel using one for the first time? > > I DON'T want to have to use any of them! I'm ANGRY! > > Patti - Michigan > > > > ------------------------------ > Need a job? Find employment help in your > area<http://yellowpages.aol.com/search?query=employment_agencies&ncid=emlweusyelp00000002> > . > > > = > > ------------------------------ > Need a job? Find employment help in your > area<http://yellowpages.aol.com/search?query=employment_agencies&ncid=emlweusyelp00000002> > . > > > > > -----Inline Message Follows----- > > Jim, > I have even more respect for your view now that you have explained it in > such a personal way. I haven't changed my own view but I love getting to > wear the other persons moccasins (I'm Christian and my best friend > is Buddhist). I'm thrilled at how well this discussion has gone (can we > talk about race next... just kidding) > > Mindy the Artist > > On Mar 26, 2009, at 8:02 PM, Jim Lubin wrote: > > They are just going to throw those unused blastocysts away only because > someone is making the choice to do so. After they are created they remain > frozen indefinitely until a decision is made by someone to remove them from > their frozen state. > > I've seen the argument be made that they are going to die anyway so why not > use them to help others, such as organ donation. I started thing about that > reasoning a few years ago. As someone who is only being kept alive by a > ventilator breathing for me I began thinking that "someone" could decide > that if I was taken off the ventilator I would die anyway so why not use my > organs to better someone else's life. Someone might decide that my heart, my > liver, my lungs would be better used by someone else who might be more > important or more productive, less of a burden cost wise, to society. I am > not an organ donor. > > Remember the Terri Schiavo case in 2005? It was a big topic on the > vent-users list. Her husband claimed she was in a Persistent vegetative > state, her family said she was not. The media kept saying they want to > remove her from "life support". She was not on life support, she had a > feeding tube. Big difference. A ventilator is life support. Her feeding tube > was removed and she was starved to death because nutrition was withheld. It > was very scary to everyone who is on life support they way people were > fighting to get her feeding tube removed. If people felt so strongly about > her being removed what about us? > > I believe that human life begins at conception and that those blastocytes > should be protected until natural death. Use them what they were created for > or keep them frozen (i.e. on life support). I don't think these blastocytes > should have been created in the first place, if a couple can't have a baby > without intervention then it's not meant to be. That's just what I believe. > Obviously it's legal so the world doesn't operate the way I believe. > > Jim > > At 10:24 AM 3/26/2009, Westgold wrote: > > They just throw those unused blastocytes in the garbage, they end up in > some medical waste dump somewhere. Would you rather than that, than see > those cells being used to help cure a lot of horrible diseases? You say > that you support organ donation -- isn't giving these blastocytes a chance > to help save somoene's life similar to organ donation? Don't you think they > would rather do some good with whatever life they have, rather than just be > thrown in a dump? > > ---- > Jim Lubin > jlu...@eskimo.com > http://makoa.org/jim > disAbility Resources: http://www.makoa.org > > > > > >
