Janice, Allen Rucker was on here for a little while. I too read his book.
Borrowed it from the library after I heard about it. He was one of the
speakers at the Symposium in Seattle last summer.
Heather in Calgary
----- Original Message -----
From: Janice
To: patticoo...@wi.rr.com ; tmic-list@eskimo.com ; balmat...@aol.com
Sent: Tuesday, April 21, 2009 6:55 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Actually, the way I got in contact with this group is from a TM'er that did
write a book about his TM experience. I contacted him
after reading the book and after 2-3 emails he asked me if I had joined this
group. So I did! Funny thing though, he hasn't joined
in with any emails. He lives in California and is a writer as an
occupation. His book is "The Best Seat in the House" and the
author is Allen Rucker. He has had TM for about 9 years. I identified
with some of it too. Janice
----- Original Message -----
From: balmat...@aol.com
To: jan...@centurytel.net ; patticoo...@wi.rr.com ; tmic-list@eskimo.com
Sent: Monday, April 20, 2009 11:13 PM
Subject: Re: [TMIC] leg and foot comfort in bed
Absolutely Janice,
I was like a Raggedy Ann doll. Totally floppy from the waist down,
couldn't sit without being propped up, and no matter what position my legs were
put in, they flopped. It is painful to look back and see what I was like when
TM happened, but good to see how far I've come. I often forget about all that
has happened to me, all the strange little occurances as well. I could write a
book, but then, I really wouldn't want to write it all down, and surely, I
doubt anyone would want to read as much of it as there is.
We've come a long way baby!
Hugs to all! Barbara A
-----Original Message-----
From: Janice <jan...@centurytel.net>
To: Patricia Cooley <patticoo...@wi.rr.com>; tmic-list@eskimo.com;
balmat...@aol.com
Sent: Sun, 19 Apr 2009 8:34 pm
Subject: Re: [TMIC] leg and foot comfort in bed
You reminded me of my old hospital days where I could not turn over without
help, or slide up in the bed. When you can
look back and see where your body has actually gotten stronger - even with
the problems TM has left us - you realize how
fortunate we are. I am comparing us to 2 people I know that are dying of
cancer. Parts of our lives are the pits, but we
know we have our lives to live and in most cases, improvement to look
forward to. Jance
----- Original Message -----
From: Patricia Cooley
To: 'Janice' ; tmic-list@eskimo.com ; balmat...@aol.com
Sent: Sunday, April 19, 2009 10:47 AM
Subject: RE: [TMIC] leg and foot comfort in bed
I, TOO, AM FORTUNATE THAT I DON’T HAVE ANY SKIN SENSITIVITY. I ALSO
DON’T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE
IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT
AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL
I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO
UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD
RAISE THE HEAD OF THE BED SO I WASN’T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE
TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A
NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE
FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN
OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS
ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT
WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH
TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW
VERY LUCKY I AM THAT I DON’T SUFFER MANY OF THE PROBLEMS A LOT OF TM’ERS DO.
MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE OF ALL THE
SUPPORT FROM ALL OF YOU ON THIS WEB SITE.
PATTI IN WISCONSIN
From: Janice=2 0[mailto:jan...@centurytel.net]
Sent: Saturday, April 18, 2009 11:34 PM
To: tmic-list@eskimo.com; balmat...@aol.com
Subject: Re: [TMIC] leg and foot comfort in bed
I am soooo fortunate that I don't have the skin sensitivity that so many
of you talk about. If I pull up something really soft, like my gown or robe,
I will spasm for a minute, but I don't really have pain, just discomfort and
only for a minute. I would think that
the cotton knit would be a blessing. I like 100% cotton to sleep in for
summer - it helps keep me cool.
Janice
----- Original Message -----
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 12:20 AM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber.
Isn't it great when we find something that works for us, most of the time????
It's just amazing! It's definately a game of trial and error, that's for sure.
Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night.
There are times when I cannot even stand skin to skin contact. That's why I
sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-----Original Message--- --
From: Janice <jan...@centurytel.net>
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs
too. But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes
care of any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
----- Original Message -----
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some
point during our TM lives, skin sensitivity against fabric, and it's the worst
when we are trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years
(T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It
started as sensitivity and is so often PAIN. I've gone from egyptian cotton,
very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton. In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey. I'm not saying that I can always
have my legs against them, because I cannot, I lay on my back many nights with
my knees bent so nothing touches my legs. Blankets are much worse, so you need
to get the most comfortable sheet you can near your skin. If you have any
"old" pajama bottoms, those are also some of the most comfortable, or I wear
the short ones.
I've bought some microfiber plush pants this year from OldNavy.com
and they have been warm on my legs and haven't irritated them. I am very much
looking forward to warmer weather when I can wear short pants all the time and
not being uncomfortable.
Hugs to all, Barbara A in CA
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