Jeanne,
Thank you for your support! I need to work harder, but have let myself be lazy!
But, I am trying hard now and I am getting stronger. It just seems like nothing
is happening now. I need more muscles to work! Maybe they will, who knows?
where is your swelling, and how long before you could move your legs again?
Hope you are having a wonderful day
amanda
________________________________
From: jrushton <jrush...@columbiaenergyllc.com>
To: Amanda Diskey <adis...@yahoo.com>; tmic <tmic-list@eskimo.com>
Sent: Tuesday, May 5, 2009 7:36:18 PM
Subject: Re: [TMIC] Fw: my transverse myelitis story
Thank you so much for sharing with us, Amanda. You have really had a hard time
but it sounds like you have had some improvements. With PT/OT and sheer
determination, I think you can improve even more, truly I do! I went from
where you are to being able to walk and get around on my own at home, thanks to
the walls and furniture but by gosh, I walk! I still can't 'feel' like I did
and do have spasms and pain but it is all so much better. Again, thank you,
and we are all here to help you any way we possibly can! Jeanne
-------Original Message-------
From: Amanda Diskey
Date: 5/5/2009 9:06:58 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Fw: my transverse myelitis story
----- Forwarded Message ----
From: Amanda Diskey <adis...@yahoo.com>
To: wllo...@tampabay.rr.com
Sent: Tuesday, May 5, 2009 12:33:53 PM
Subject: my transverse myelitis story
Hello, I am Amanda a 30 year old single mother of two awesome kids, and this is
my story about the worst day of my life! I got up that day and helped my
boyfriend clean his daddy's house, we ate lunch when we were finished, and I
went outside for a smoke. While smoking my cigarette I started having chest
pains, and my right arm was hurting so I went back in and laid on the couch.
About an hour later, or maybe more, I decided to go to the ER in case I was
having a heart attack. They took me back immediately, but they could find
nothing wrong with me. After six hours of tests I told them the chest pains
were probably caused by my GERD (acid reflux) because it had happened to me
before, and I wanted to go on home. After I left i noticed one of my knees
buckled every time I took a step, but I didn't think much of it. I went to bed
early cause I just didn't feel good, and I woke up about 11 p.m. because my
back was on fire like it was sunburnt. There was a
rash across my shoulders and down my spine. I was feeling really bad, and I
told my boyfriend I needed to go back to the hospital. When I went to get out
of bed I almost fell in the floor, but he caught me. I could not stand so he
had to carry me to the car along with both kids. So here we go, I have to stop
on the way and started throwing up over and over again. I finally get to my
second hospital of the day only to run tests until 6 a.m. and finally admitted
to a room where they left me lay for 12 more hours without even monitoring me.
When the neurologist finally came at 6 p.m. I was paralyzed from the shoulders
down. He said that 2 more hours I could have died! He transferred me to ICU at
another hospital and I was 3 points away on blood oxygen levels from being put
on life support. It was 2 days before I was diagnosed with TM at C6-T3 and also
T9-T10. I received 5 days of IVIG, and 10 days of solumedrol, and an antiviral.
I stayed in ICU for 8
days, 2 days on the neuro floor, and 6 weeks of inpatient rehab. I still go to
therapy now. I got a partial recovery, my arms returned but not so much my
hands. My trunk and legs remain paralyzed but I can wiggle my toes! It has been
9 months now and who knows what could happen! Maybe they will figure out a cure
one day!!
