I recently passed my 2 year mark and today I am going to try out a
TEN's unit so wish me luck!
Mindy the Artist
On May 7, 2009, at 10:25 AM, Tami Streeter wrote:
Janice, Thank you for saying this about the 2 year mark. I am
getting close to it and found myself getting nervous and down
thinking “this is it”. You guys keep me going!
Thanks,
Tami
From: Patricia Cooley [mailto:patticoo...@wi.rr.com]
Sent: Thursday, May 07, 2009 9:21 AM
To: 'Janice'; 'Amanda Diskey'; pjv1...@chartermi.net; tmic-
l...@eskimo.com
Subject: RE: [TMIC] Fw: my transverse myelitis story
YOU ARE RIGHT JANICE. I GUESS AS LONG AS I AM DRAWING A BREATHE I
WILL HOPE AND WORK TOWARDS ANY IMPROVEMENT NO MATTER HOW LONG IT
TAKES. THANKS FOR THE ENCOURAGEMENT.
PATTI IN WISCONSIN
From: Janice [mailto:jan...@centurytel.net]
Sent: Wednesday, May 06, 2009 8:38 PM
To: Patricia Cooley; 'Amanda Diskey'; pjv1...@chartermi.net; tmic-
l...@eskimo.com
Subject: Re: [TMIC] Fw: my transverse myelitis story
Amanda and Patti,
When you think of the "2-year mark", don't be too disappointed if
you are not where you want to be. I let it be a big thing for
me and was panicky when 2 years came and I wasn't where I wanted to
be and felt there would be no more recovery.
Recovery still happens. Your body doesn't know 2 years from
butkus! The doc's are only saying the biggest hunk of
recovery comes "a b o u t" then. There will be more. Also, I
think something happens in the adjustment to your body. You
begin to accept, but are still working for improvement. At least,
that was the way it is for me at 28 months of TM.
Janice
----- Original Message -----
From: Patricia Cooley
To: 'Amanda Diskey' ; pjv1...@chartermi.net ; tmic-list@eskimo.com
Sent: Wednesday, May 06, 2009 10:37 AM
Subject: RE: [TMIC] Fw: my transverse myelitis story
AMANDA:
IT IS OBVIOUS THAT YOU HAVE BEEN PUT THROUGH THE WRINGER. I AM SO
SORRY FOR ALL YOU HAVE SUFFERED. I WAS DIAGNOISED WITH TM LAST
JUNE. WHEN IT HAPPENED I WAS UNABLE TO MOVE MY LEGS AND HAD NO
FEELING. IN THE LAST 11 MONTHS I HAVE COME A LONG, LONG WAY. THE
BIGGEST CHANGE HAS BEEN IN THE LAST 2-3 MONTHS. I HAD BEEN ABLE TO
USE A WALKER, BUT I FIGURED I WOULD NEVER BE ABLE TO USE A CANE.
BUT, ALL OF A SUDDEN I FIND THAT I CAN USE A CANE AND EVEN WALK
WITHOUT A WALKER OR CANE. I DO NEED TO GRAB HOLD OF FURNITURE OR
THE WALL, BUT I AM ABLE TO WALK SHORT DISTANCES. SO PLEASE DON’T
GIVE UP. KEEP UP WITH YOUR THERAPY. I THINK IN MY CASE I WAS
FORTUNATELY DISGNOISED IMMEDIATELY AND PUT ON STEROIDS RIGHT AWAY.
EVERYONE HAS SAID THAT IMPROVEMENT COULD HAPPEN WITHIN THE FIRST 2
YEARS, SO WE HAVE A LONG WAY TO GO BEFORE WE REACH THAT POINT.
DON’T GIVE UP. WE ARE HERE FOR EACH OTHER SO KEEP US POSTED.
PATTI IN WISCONSIN
From: "pjv1...@chartermi.net" <pjv1...@chartermi.net>
To: tmic-list@eskimo.com; Amanda Diskey <adis...@yahoo.com>
Sent: Wednesday, May 6, 2009 6:38:49 AM
Subject: Re: [TMIC] Fw: my transverse myelitis story
Amanda,
I have chills from reading your story and I think they started when
I read that you can wiggle your toes. I hope you continue to
acquire movement and will keep us up-to-date on your
accomplishments. I was still "healing" at nine months and pray
that you are too.
Patti - Michigan
---- Amanda Diskey <adis...@yahoo.com> wrote:
>
----- Forwarded Message ----
From: Amanda Diskey <adis...@yahoo.com>
To: wllo...@tampabay.rr.com
Sent: Tuesday, May 5, 2009 12:33:53 PM
Subject: my transverse myelitis story
Hello, I am Amanda a 30 year old single mother of two awesome kids,
and this is my story about the worst day of my life! I got up that
day and helped my boyfriend clean his daddy's house, we ate lunch
when we were finished, and I went outside for a smoke. While
smoking my cigarette I started having chest pains, and my right arm
was hurting so I went back in and laid on the couch. About an hour
later, or maybe more, I decided to go to the ER in case I was
having a heart attack. They took me back immediately, but they
could find nothing wrong with me. After six hours of tests I told
them the chest pains were probably caused by my GERD (acid reflux)
because it had happened to me before, and I wanted to go on home.
After I left i noticed one of my knees buckled every time I took a
step, but I didn't think much of it. I went to bed early cause I
just didn't feel good, and I woke up about 11 p.m. because my back
was on fire like it was sunburnt. There was a
> rash across my shoulders and down my spine. I was feeling really
bad, and I told my boyfriend I needed to go back to the hospital.
When I went to get out of bed I almost fell in the floor, but he
caught me. I could not stand so he had to carry me to the car along
with both kids. So here we go, I have to stop on the way and
started throwing up over and over again. I finally get to my second
hospital of the day only to run tests until 6 a.m. and finally
admitted to a room where they left me lay for 12 more hours without
even monitoring me. When the neurologist finally came at 6 p.m. I
was paralyzed from the shoulders down. He said that 2 more hours I
could have died! He transferred me to ICU at another hospital and I
was 3 points away on blood oxygen levels from being put on life
support. It was 2 days before I was diagnosed with TM at C6-T3 and
also T9-T10. I received 5 days of IVIG, and 10 days of solumedrol,
and an antiviral. I stayed in ICU for 8
> days, 2 days on the neuro floor, and 6 weeks of inpatient rehab.
I still go to therapy now. I got a partial recovery, my arms
returned but not so much my hands. My trunk and legs remain
paralyzed but I can wiggle my toes! It has been 9 months now and
who knows what could happen! Maybe they will figure out a cure one
day!!