I have been taking Boniva for over 7 years. I tried the daily and weekly supplements but that caused constant diarrhea
Part of my problems is that 33 years ago, I had to have my colon removed (ileostomy) and a foot of my small intestine along with the rectum (I was given a 90% of cancer but beat that). Therefore, my body does not absorb alot of the nutrients that I need. I am on 50,000 units of Vit. D 1X weekly plus I take additional supplements of Vit. D, 2,000 IU and calcium with magnesium 2X daily. Plus I eat yogart, eat cheese, and have milk daily. The milk does cause diarrhea but I LOVE milk and try to have it in the afternoon. The good thing about the ileostomy is that I don't have the problems of constipation that alot of us TM'ers have because I wear an appliance to catch the waste and have to empty it atleast 5X aday. I also have the problem that even with the Vit. D supplements, my system only shows 1/4 of the required Vit. D. I did some research and yes I thought about the IV but the cost is about $1800 which is alot but if you are paying approx. $100 per month for Boniva is not too much different. I also found where you can have a daily injection of teriparatide (forteo) but haven't found any $ amount. My biggest problem is that I was born into the wrong body or with this body the wrong family I could almost be a bionic woman with the $ amount I have had to spend just to keep living! Prayers and thoughts for you and yours,Candy K. ----- Original Message ----- From: montzma...@aol.com To: cakal...@embarqmail.com Sent: Thursday, May 28, 2009 10:07:08 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Steroids and Osteoporosis I HAVE HAD OSTEOPOROSIS FOR YEARS NOW. I HAVE HAD TM FOR ALMOST 18 YEARS. I HAVE BEEN ON AND OFF OF THEM FOR THE LAST 17 AND 8 MONTHS OF LIFE WITH TM. I GET A BONE DENSITY TEST EVERY YEAR. I TAKE 50,000 UNITS OF VITAMIN D ONCE A MONTH. I ALSO TAKE BONIVA ONCE A MONTH. MINE IS IN MY HIPS. BUT I HAVE GREATLY IMPROVED. SO MY ENDOCRONOLOGIST HOPES I CAN STOP THE BONIVA IN A YEAR. THEY NOW HAVE A SHOT YOU TAKE CALLED RESTASIS ONCE A YEAR, ITS REALLY A FIFTEEN MINUTE IV SORRY ABOUT THAT. MY DOCTOR WANTED ME TO DO THAT BUT ITS VERY EXPENSIVE LIKE 1800 SO MY INSURANCE COMPANY WOULD NOT COVER IT.SO I WILL STAY ON THE BONIVA FOR ANOTHER YEAR IT WORKS AND IS ALOT CHEAPER, I PAY 150.00 FOR 3 PILLS. EVERYONE ON STEROIDS ARE WHO HAVE BEEN ON THEM NEED A BONE DENSITY TEST. TIAD PAM!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Cooking Dinner For Two? Sign Up & Get Immediate Member-Only Savings.
