I had one dose before they took it off the market. When it came back on the market they had changed the protocol and I no longer qualify. I take Rebif and I am pretty much stable on that. I still have attacks but they are less severe and I can tolerate the drug....so according to the protocol they do not recommend a change.
That doesn't stop them from sending me their pricey propaganda every month. I sure was excited when I started on it when it first came out. I was glad to be rid of the shots and the once a month infusion seemed like cake. Oh well. Once they get some good stats piled up maybe they will ease up on the protocol. Having said all that....if I could choose between the Betaseron (started on that in 2001), the Rebif (switched to that when the FDA got around to approving it) or the Tysabri..... I would pick the Tysabri. I have never done the Avonex but for me that Betaseron was nasty and the Rebif is easier to tolerate. Sandy in sunny but windy Wisconsin. Where the orioles are fighting of the grackles for the grape jelly and the hummingbirds think they own the joint. ----- Original Message ----- From: wim from holland To: TMIC Sent: Sunday, May 31, 2009 5:39 PM Subject: [TMIC] Tysabri (natalizumab) Is there anyone who has expirence with this new kind of drug. It is defeloped for MS but what good is for that group, sometimes helps for TM patients. Wim from Holland. ------------------------------------------------------------------------------ Deel je favoriete foto's online met Windows Live Photos
