Kathy, Heat and humidity hit me the same way it does you and you did a good job describing it. I give up whatever I am doing and sit with something cold to drink and an ice pack.
My husband of 41 years has been extremely understanding with our "lack" of sex since TM. He considers 39 years a pretty good run of sex!! I have always done the "wife" jobs around the house since I have always worked only part time. He took over completely when I got home from the hospital and as I recuperated and got stronger, he let me gradually take over some of the jobs. I still can not vacuum or clean tubs, but I do most of the other things around the house. I just have to pick my times to do them and rest afterward. TM is a hideous disease and any improvements I have worked to get, I am grateful for. I am just REALLY realizing that I will never be 100%. Janice ----- Original Message ----- From: LadyOwl1961 To: tmic-list@eskimo.com Sent: Friday, June 12, 2009 10:41 AM Subject: [TMIC] Janice's questions Janice.. In answer to your questions. 1. Since Tm I have always had a problem in the heat. Humidity included makes it very bad for me. I start getting a very weird feeling almost becoming very limp and weak and if I cannot control my limbs. The only way I can explain it to non-tm people is I get a floating feeling and when it happens I have to find a place to cool down. I use towel wrapped ice packs on my wrists, back of my neck, forehead and the back of my knees. Once cooled it seems the energy has been sucked right out of me. I like very warm showers (which give me the same effect) so I have been taking my showers right before bed. Works better than any sleeping pill ever made. LOL 2. I get banding in 2 spots. The first is around the bottom are of my chest. Right where the bottom of my bra sits. It is about 3 inches wide and goes right around my trunk. At times removing my bra help but other times it seems to want to stop me from breathing. Nothing but resting or sleeping helps this. The other banding I get is around my neck area. It seems to be right where the top band of a tee shirt is. I sometime feel like I am chocking. When I have it you will see me pulling at the neck of any top even if they are not even close to my neck. I have stretched out all my tops this way plus being a big Turtle neck fan in winter has stopped except on good days. 3. As for my marriage it is very good in allot of ways since my husband knew about my TM before we married. June 7th of this year was our 10th anniversary. Our sex life has steady gone downhill but we love each other and he is very understanding of my TM. At times we both get frustrated with it when I can't go to a wedding or family get together, when I can't clean or cook, or when I can't stand to be touch by even a sheet or clothes. Lyrica has helped with allot of this but right now nothing is helping. I am more angry, frustrated and sad that I can't do more while he remains patient and loving.
