Please delete me from the list. Thanks, I know it may take some time. Dee
________________________________ From: "tmic-digest-requ...@eskimo.com" <tmic-digest-requ...@eskimo.com> To: tmic-dig...@eskimo.com Sent: Thursday, August 13, 2009 12:41:35 PM Subject: tmic-digest Digest V2009 #809 Note: Forwarded message is attached. -----Inline Message Follows----- tmic-digest Digest Volume 2009 : Issue 809 Today's Topics: RE: [TMIC] Wheelchair questions [ "Patricia Cooley" <patticoo...@wi.r ] Re: [TMIC] Need some help please [ Catherine <camoa...@yahoo.com> ] Re: [TMIC] Need some help please [ Trudy Ogilvie <mother...@gmail.com> ] [TMIC] KNEE REPLACEMENTS... [ roseofr...@aol.com ] [TMIC] Re: need some help [ roseofr...@aol.com ] -----Inline Message Follows----- KEVIN I PURCHASED A PRIDE GO GO ELITE SCOOTER IN APRIL. I LOVE IT. I HAVE USED IT FOR SHOPPING, AND ATTENDING OUTSIDE FUNCTIONS LIKE OUR STATE FAIR. IT IS EASILY DISASSEMBLED AND WOULD FIT IN THE TRUNK OF ANY CAR. THE HEAVIEST ITEM IS THE BATTERY WHICH IS 28 LBS. MY DAUGHTER CAN TAKE IT APART IN ABOUT A MINUTE. I BOUGHT MINE NEW FOR $1300.00, BUT YOU CAN ALSO GET THEM USED. A GOOD FRIEND OF MINE BOUGHT A USED ONE SEVERAL MONTHS AGO. I DID NOT WANT A POWER WHEELCHAIR BECAUSE THEY ARE TOO HEAVY AND I ONLY USE MY SCOOTER WHEN I AM OUT NOT IN THE HOUSE. IF YOU GOOGLE POWER SCOOTERS, YOU WILL HAVE MANY LISTED. PATTI - WISCONSIN -----Original Message----- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Tuesday, August 11, 2009 8:55 PM To: tmic-list@eskimo.com Subject: [TMIC] Wheelchair questions I am wondering who uses Power Wheelchairs on the TMIC? I cannot use a manual wheelchair because my hands are bad. Would you mind posting which chair you use, what you like or don't like about it, is it good for indoor or outdoor use or both? I am considering a Pride Go-Chair mainly because it is small and comes apart for travel. (note: this is not the same as a Go-Go Scooter) Also, is anyone familiar with the wheelchair provider Maxim Mobility in New Haven, CT? Good or bad? Thanks! Kevin -----Inline Message Follows----- Linda, I feel quite sad for your situation. I am sorry I have no ideas. However, I want you to know you are in my thoughts and prayers. God Bless You, Catherine ________________________________ From: L T CHERPESKI <cherp...@msn.com> To: TM List <tmic-list@eskimo.com> Sent: Tuesday, August 11, 2009 11:38:46 PM Subject: [TMIC] Need some help please Hi everybody, I'm hoping you guys can help point me in the right direction. There are so many of us on the TM site there's just got to be someone who knows somebody with the same or similar dilemma. Most of you know that I've had Sjogrens for 20+ years (unfortunately, progressive and aggressive) and 7 yrs ago TM came into my life. I am on heavy chemo meds (Imuran and Rituxan infusions) to suppress my immune system to keep it from attacking my body. Last Sept I had a "minor" surgery to repair a torn meniscus in my knee, and my body went into the longest, hardest relapse I've ever had. I'm just now getting my arms and hands "back" - I think this is as much as I'll get this time. Almost everything else has gradually come back. My one huge problem is that my KNEES took the biggest hit - my doctors said it was because they were the weakest part of my body at the time. I have infected knees (right one to the bone) and am walking (trying) on bone on bone knees. They both need to be replaced. And, I have TM, so already my walking is not that pretty. I was sent out of state to a surgeon who does a special knee replacement surgery that is less invasive. Long trip, big disappointment. He will NOT do surgery on me either because of the "aftermath" - said it would be like doing brain surgery due to my autoimmune diseases. Well that's fine - I have always wanted to do anything but the surgery, but was given no OTHER choices. And, I am still being given NO options. So I've done some of my own research. What about physical therapy to get my thigh and quad muscles built up so they can take some of the load off my knee joints? (I'm a fairly small person so we're not talking about losing 50 lbs and that would make things all better) Water therapy? I'm not quite sure how to get these muscles built up when my knees hurt so bad I can hardly bend them, but there has to be a way. My doctors have kind of given up on me, which at first shocked me, now I'm just really mad. Any ideas would be much appreciated. Thanks guys, Linda -----Inline Message Follows----- Linda, I wish I had some medical advice to give you.... I have always understood that "water therapy" is the number one choice for all kinds of issues that we have. I used to hang on the side of the pool and do exercises... would google the internet for water exercises, or water aerobics, there has got to be something out there to help you. Keep fighting! Trudy "Most of us are greater than we dare to believe." Pablo Casals On Tue, Aug 11, 2009 at 11:38 PM, L T CHERPESKI <cherp...@msn.com> wrote: Hi everybody, > >I'm hoping you guys can help point me in the right direction. There are so >many of us on the TM site there's just got to be someone who knows somebody >with the same or similar dilemma. > >Most of you know that I've had Sjogrens for 20+ years (unfortunately, >progressive and aggressive) and 7 yrs ago TM came into my life. I am on heavy >chemo meds (Imuran and Rituxan infusions) to suppress my immune system to keep >it from attacking my body. Last Sept I had a "minor" surgery to repair a torn >meniscus in my knee, and my body went into the longest, hardest relapse I've >ever had. I'm just now getting my arms and hands "back" - I think this is as >much as I'll get this time. Almost everything else has gradually come back. >My one huge problem is that my KNEES took the biggest hit - my doctors said it >was because they were the weakest part of my body at the time. I have >infected knees (right one to the bone) and am walking (trying) on bone on bone >knees. They both need to be replaced. And, I have TM, so already my walking >is not that pretty. > >I was sent out of state to a surgeon who does a special knee replacement >surgery that is less invasive. Long trip, big disappointment. He will NOT do >surgery on me either because of the "aftermath" - said it would be like doing >brain surgery due to my autoimmune diseases. Well that's fine - I have always >wanted to do anything but the surgery, but was given no OTHER choices. > >And, I am still being given NO options. So I've done some of my own >research. What about physical therapy to get my thigh and quad muscles built >up so they can take some of the load off my knee joints? (I'm a fairly small >person so we're not talking about losing 50 lbs and that would make things all >better) Water therapy? I'm not quite sure how to get these muscles built up >when my knees hurt so bad I can hardly bend them, but there has to be a way. >My doctors have kind of given up on me, which at first shocked me, now I'm >just really mad. > >Any ideas would be much appreciated. > >Thanks guys, > >Linda > > -- Everything is possible for one who believes, still more for one who hopes, even more for one who loves" -----Inline Message Follows----- A couple of weeks ago I read an article about knee replacements... all I can remember about it is this: Women need to make sure their doctors replace their knees with a WOMAN'S knee cap..... that's where the problem comes in with people that have had a replacement and wind up having all kinds of problems with it....men's knee caps are different from ours. Check with your doc about this before any surgery. If I can find that article I will type it up for you all. Hugs, Lynn ________________________________ -----Inline Message Follows----- Jeff ~ I haven't seen any responses to your letter ....perhaps because it is such a touchy subject....perhaps because people on the list don't know quite how to respond to you.......I am willing to give it a shot.....from a Christian perspective. I think it is not so much sex that you are missing, but rather a loving relationship with someone - so much so that you are willing to do anything to find love. We all hunger for love and intimacy and often look for fulfillment in all the wrong places. God is able to supply all need according to His riches in glory by Christ Jesus (Philippians 4:19) - usually quoted in terms of financial need, however it is not limited to money. In truth, Our Father is able to fill the emptiness in your life to the extent that meaningless sex would be exposed for what it really is; i.e., meaningless sex and a sin nature running amuck. There is no real fulfillment there (sex for sex's sake), only pain and complications to a life that has plenty of challenges already. Seek, (truly, prayerfully seek), God's will in your life - for if we seek first the Kingdom of God, and His righteousness, all these things shall be added unto you (Matthew 6:33) and, again, Father knows best what kind of human intimacy is required and will meet your needs and (this is the best part) the needs of the female that will be in your life. You may find that a sexual relationship is secondary to a truly loving friendship, or it may be that Father has another marriage in your future and a better sexual relationship than you can even imagine. With God all things are possible, IF we put Him first and foremost in our lives. I wish you only the best. ~ Lynn In a message dated 8/09/2009 5:19:58 A.M. Pacific Daylight Time, jeffsmokeeater writes: im not writing this to sound discusting,but i have a serious problem and want to know if any of you have ever went through this and how you handled it. >first of all let me tell you all i am very comfortable with my sexuality and >preferance,but recently some very confusing feelings have crossed my mind,let >me start by saying when i was 16 yo i had sexual contact with somone of the >same sex,i think it was more out of curiosity than anything else,but i enjoyed >it and after that i started going with people of the opisite sex,but i never >forgot that first experience,well i got married and have 4 children and myself >and my wife of 16 years split up last year. >here is the problem,ive had ms for 9 and a half years and like some on the >list i have problems with paraplegia and im in a wheelchair so i dont need to >give the details as most of you can pretty much figure it out,but i find >myself craving for sexual contact and have even thought of contacting my >friend from when i was 16 just for somthing,i am not gay,but this is like >torture and its all i think about and its driving me crazy,just the thought of >the same sex makes me wonder about myself and what the heck is going on inside >my head,im 40 years old and never imagined this,but im desperate.any advice >would help. > > > > ________________________________
