Avonex - new to me. What is it supposed to do? Janice
From: bobby jim
Sent: Sunday, February 14, 2010 8:25 PM
To: Janice Nichols ; rj_ran...@yahoo.com ; tmic-list@eskimo.com ; Barbara Alma
Subject: Re: [TMIC] TM and Pilates
Improvement......... me thinx she's at the stage where improvement would be the
regeneration of her myelin, a feat not yet at hand. She's fully mobile,
sleeps well, works an eight-hour day and loves to cook. She also likes
gardening but I take care of the harder chores because after a couple of hours
out in the garden, specially in the summer, she starts to fade a bit.
All this, am sure, is because she's been on Avonex since March '99.
BobbyJim
From: Janice Nichols To: bobby jim ; rj_ran...@yahoo.com ;
tmic-list@eskimo.com ; Barbara Alma Sent: Sunday, February 14, 2010 18:26
Subject: Re: [TMIC] TM and Pilates
She really had it rough. Hope, eventually, she will improve. We hear
from others that after many years, improvement still happens. I wish her
luck.
Janice
From: bobby jim
Sent: Sunday, February 14, 2010 5:33 PM
To: jan...@centurytel.net ; rj_ran...@yahoo.com ; tmic-list@eskimo.com ;
Barbara Alma
Subject: Re: [TMIC] TM and Pilates
Well, me missus went from an initial TM dx to an MS dx after her second
attack.
Today, 12 years later, she still has the same lingering effects. A 'sore'
back at T-8, chronic fatigue and a dislike for extreme heat and cold.
BobbyJim
From: Barbara Alma To: jan...@centurytel.net ; rj_ran...@yahoo.com ;
tmic-list@eskimo.com
Sent: Sunday, February 14, 2010 16:50
Subject: Re: [TMIC] TM and Pilates
I still have all the same symptoms, they haven't changed. Initially as my
body sort of "woke up" as I say, I went gradually from having no pain or
feeling to having more and more pain. I still have decreased sensation in some
areas and hyper or hypo sensation and pain in others. I have B/B issues too.
As time goes on my symptoms still don't really change. My symptoms are so much
like so many others here and that's the reason that I stay. I think this may
be relative to the fact of it being spinal cord injury, not sure. Maybe injury
is injury, and the effects of it remains the same depending upon where on the
cord the injury happens. But, I may be over simplifying things.
I am very pleased to say though, and this is extremely important to me,
that when I do slack off on my exercises and notice my body getting weaker, it
does bounce back when I get back into an exercise routine again. I generally
stop doing my exercises when I get sick and need all the energy and strength
just to get around the house and to the bathroom. And at that point I really
weaken. I know this happens to many of you. If I have the flu or any
infection, it is really hard on my body.
Hugs, Barbara A in Auburn CA
-----Original Message-----
From: Janice Nichols <jan...@centurytel.net>
To: rj_ran...@yahoo.com; tmic-list@eskimo.com; Barbara Alma
<balmat...@aol.com>
Sent: Sun, Feb 14, 2010 9:23 am
Subject: Re: [TMIC] TM and Pilates
Looks like Randy and Barbara are living proof that TM, or whatever, is
still not understood very well. Seems strange that they follow the symptoms
for a while and
then change some, but then isn't that what TM does? I am certainly not
the same as I was when TM hit - yet I still follow the symptoms, a couple added
and a
couple disappeared. What a situation it puts us in, but at least we all
have each other. Can't tell you what a difference it made to discover this
website. Thanks
guys.
Janice
From: Barbara Alma
Sent: Saturday, February 13, 2010 11:39 PM
To: rj_ran...@yahoo.com ; tmic-list@eskimo.com
Subject: Re: [TMIC] TM and Pilates
Hi Randy and all TMIC,
I am another one who was originally told that I had TM and am now being
told that I don't, and that's by the same doctor and another as well. I've
never been talked to about MS though. I had only one attack, was paralyzed
from waist to toes within 15 minutes, at lesion T8-10. I even went to 2
different hospitals, as I wanted a second opinion, both with a TM diagnosis.
After about 3 yrs I was told by my first Neuro, who became my treating
Neuro that I didn't have TM. He didn't know what caused the paralysis and no
other information as to why. Not a spinal infarction or stroke, or anything
else. I had trouble with my disability claim and he was the cause so I changed
Neuro's a few of years later and she had MRI's done and told me the same thing.
MRI's have come a long way and the lesion is not there any longer and they
can't see any cause, like a bleed or anything. She looked for evidence of a
bleed because she wanted to rule out the possibility of it happening again and
couldn't find it.
So guys, since I've had 2 Neuro's both tell me that I don't have TM, I
really don't care. I'm sticking with it, and you are just stuck with me. I'm
happy here, I get the support that I need, I give it when I can, and I'm not
going anywhere. I really don't know what caused my problems, and I really
don't care at this point. It is what it is. I've had this crap for over 10
years and it's not going away. I had TM symptoms and that's where I started,
so I'm sticking with it.
Hugs, Barbara A in Auburn CA
-----Original Message-----
From: rj_ran...@yahoo.com
To: Grace M. <grace...@gmail.com>
Cc: Janice Nichols <jan...@centurytel.net>; tmic-list@eskimo.com
Sent: Sat, Feb 13, 2010 1:18 pm
Subject: Re: [TMIC] TM and Pilates
Janice its ok. I've actually been wondering if I should stay. I feel very
awkward these days. I've been told more than once that I had all the "textbook"
signs for ms and I did loose my left foot followed by my right leg then my
bladder was told I had tm and went through the most unbelievable facial pain.
Had several doc all with different ideas and one that got me on my feet and
another that got me in pt and walking again I've been hospitalized 4 times and
now suddenly I am told that I don't have ms and show no signs of tm. I pray to
God nothing comes back. I spent an entire summer pushing myself on a tread mill
trying to rebuild my strenght but that was after the years of trying to cross
my
legs and do odd excercises on the bed floor and chair that the pt taught me. It
sure has been a mentally brain warping experience. Tx grace for calling me fam.
This is a great group of people and have helped me get through a lot of
challenges as well as put up with my venting from time to time. I think we all
have to vent.
------Original Message------
From: Grace M.
To: rj_ran...@yahoo.com
Cc: Janice Nichols
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] TM and Pilates
Sent: Feb 13, 2010 2:26 PM
Randy,
You're like family here at the site and have a lot of good input to offer. I
think that you and I came around the same time.
Janice, we don't have to currently be ill in order to participate here. ALL
are
welcome. It's not an exclusive club.
Respectfully,
Grace
Sent from my Verizon Wireless BlackBerry
