Hi Jill, I've had TM now since Sept 6, 2003.
I was on 3200 mg of Neurontin (900 mg 4 times a day) for about the first 2 years. It, along with all the other meds wiped me out but my body learned to tolerate it after a some months. I then went down to 2400 mg a day -- 600 mg 4 times a day now for the past 4 1/2 years. Never eliminates the pain but makes it tolerable. I tried Lyrica but after the first 10 days my feet, ankles and calves were badly swollen and I felt like I was walking on rockers and could not get my shoes tied tightly. So the neuro put me back on Neurontin (actually Gabapentin for me). I found that the Lyrica made a difference in the pain but the side effects were not good for me. He told me that about 7% of patients have swelling side effects to the Lyrica. I also take 40 mg Baclofen/day (10 mg with each dose of Gabapentin) for the spasms. Then 4 mg of Zanaflex before bed. Heather in Calgary ----- Original Message ----- From: Jill Posner To: Janice Nichols ; Neil McNeil ; we4king...@verizon.net ; tmic-list@eskimo.com Sent: Saturday, April 17, 2010 4:23 PM Subject: [TMIC] TMIC Neurontin--does it exhaust you? I am new to it...am on 2400mg a day--600 mg 4 times a day. It leaves me feeling like a zombie and doesn't really eliminate the pain. Lyrica is in the same family so I didn't think it made sense to wind down and up again. And it seems to have more side effects. I don't care to be as bloated as a toad. Are there other options? Jill
