I've got many wild ideas about causes, but heredity is not one of them.
What he shares with you is the environment and perhaps, and only perhaps sensitivity to certain insults/assaults. It was strange to me that this didn't manifest til i went to Rochester where there were people who knew what it was. I remember awhile back we tried anecdotally to see if there were regional/location clusters. As mine is "idiopathic" and the months i spent in the hospital were mainly about endless painful tests that yeiled not one clue, I urge you not to give into the idea that it is somehow "you." There is a lot wrong with our air, our water, our food, our medication, our environment. I am sorry to hear such sad news. I wish you both healing and strength. Akua --