Do you mind my asking what are you able to do? Were your arms affected and how did it leave you with walking/not walking? Janice
From: Laura Beaudin Sent: Thursday, June 10, 2010 11:43 AM To: Janice Nichols ; tmic-l...@eskimo.net Subject: Re: [TMIC] All my docs and therapists are on the Spinal Cord Injury Unit of our rehab hospital...definitely qualified. It sucks, but sometimes the best efforts don't work. I was on this unit as an inpatient for 6 weeks last summer, they were not able to get much back so the time ended up being spent on how to adjust to changes and become independent in spite of it. Transverse Myelitis IS a Spinal Cord Injury...just not a traumatic one (ie, not caused by an accident). Laura http://practical-homeschooling.org www.laurascoolstuff.com On Thu, Jun 10, 2010 at 10:34 AM, Janice Nichols <jan...@centurytel.net> wrote: I am getting definite improvement with PT. My pain management doc recommended a PT guy that specializes with damaged spines (like us). He knows what he is doing. We are taking it very slow because of the severe back arthritis I have and the myelitis. I also do my exercises at home in between sessions. Can you get a PT especially recommended by your doc because of our special problem? The hamstring problem is definitely from myelitis. Janice From: Laura Beaudin Sent: Thursday, June 10, 2010 11:14 AM To: Janice Nichols Subject: Re: [TMIC] Ditto...more bruising would be normal (and often is) if you have decreased sensation. As for hamstrings, mine are shortening and despite PT, I can't get them flexible again. Laura http://practical-homeschooling.org www.laurascoolstuff.com On Thu, Jun 10, 2010 at 9:04 AM, Janice Nichols <jan...@centurytel.net> wrote: Also the baclofen! Good luck and keep in touch in New York. Are you going to live there now? Janice From: Dalton Garis Sent: Wednesday, June 09, 2010 11:44 PM To: Janice Nichols ; tmic-list@eskimo.com ; Leslie Garis ; Garis, Brooks (Darien, CT) Subject: Re: [TMIC] I haven’t; But I was in very heavy labor employment before returning to get a PhD at aged 35, with lots of broken bones, back fusions, hardware, the works. So, I wouldn’t notice anyway. As to the hamstring, also, no. For me the spasticity and convulsive attacks when I try to speak during stressful situations is absolutely the biggest problem. And no one’s heard of that. But I read about this being a well documented effect of TM, that is, spasticity in some form, on the Johns Hopkins website. I also have uncooperative legs and hands a lot of the time. But I can’t keep my left foot up while walking now, so I wear western boots with big heels. They allow me to walk without the need for a foot brace. Here’s hoping I don’t get spastic in the airport or on the plane so it doesn’t get me grounded or thrown off the plane today on my flight back to NYC!!! Hey, just increase the Lyrica, right? Dalton Abu Dhabi/New York On 10/6/10 8:23 AM, "Janice Nichols" <jan...@centurytel.net> wrote: Got a couple of questions: 1. Have you noticed more bruising on affected areas of TM than you had before TM? 2. Have any of you had problems with your hamstring since TM? Janice
