It was 6 years for me in April. I do pretty well most of the time but when my symptoms get worse, it can be hard to be positive. I have had increased numbness & weakness in my hands that now sometimes goes into my arms & the body fatigue is back with a vengence, but I try to live with it. There is no use calling the nuerologist -he just says I am worse, orders another MRI & then calls saying the MRI is improving (???). I miss most being able to using my hands easily - I used to do all kinds of crafts - crossstitch, scraping booking , & sewing - it is almost impossible now. I had to retire from a wonderful job. I hate having to ask for help with things. So much for the pitty party - I try to remember NOT why God did this to me , but why he did this FOR me - there has to be a purpose. Linda E. - Texas
________________________________ From: "rn11...@yahoo.com" <rn11...@yahoo.com> To: kimharrison...@comcast.com Cc: tmic-list@eskimo.com Sent: Wed, October 6, 2010 9:49:10 AM Subject: [TMIC] 6th anniversary Hi, > It's been 15 yrs for me,and I still mourn for the losses. Not all the >time,but it is especially sad for me around this time of year. Good old >seasonal >affective disorder;It gets dark earlier. Plus,this week has been rainy and >gloomy,so that has me down. > The hardest part for me is that unless you have tm,you don't "get it". The >unrelenting tiredness,burning pain,numbness,tingling,tightness,etc. My sister >once said she "couldn't stand to have the numbness all the time." I said there >isn't a choice,it's reality,and you learn to accept it. > I thank God for the TMIC;I'd be adrift in a sea of loneliness without all >of >you. > > Cheryl in rainy (again) Easthampton,MA > > > > >--- On Wed, 10/6/10, kimharrison...@comcast.net <kimharrison...@comcast.net> >wrote: > > >>From: kimharrison...@comcast.net <kimharrison...@comcast.net> >>Subject: [TMIC] 10-06-04, the 6th anniversary TM came into my life. >>To: "TMIC" <tmic-list@eskimo.com> >>Date: Wednesday, October 6, 2010, 3:10 AM >> >> >> >> >>10-06-04, today is the 6th anniversary TM (Transverse Myelits) came into my >>life. I live in Atlanta and was on a business trip to Dallas . I would have >>never thought that waking up; putting my feet on the ground one Wednesday >>morning would have changed my life so much. I would like to say is thank you >>to >>my husband Brian, my rock that keeps me grounded. I could not have made it >>thru >>this without him by my side and support. To God for bringing Brian into my >>life >>24 years ago, and to friends and family and my extended TM family that have >>stuck by me regardless of what this spinal cord disease has thrown at me. >> >> >>There are days that it seems like it’s been forever and I can not remember >>walking, running, riding a bike, ect and days that it seems like I just woke >>up >>and realized life as I knew it would never be the same. I still have days I >>mourn for the loss of the life style I had but at the same time blessed at >>how >>much appreciation for life has been given me. I know I am blessed that this >>disease did leave me one good leg that I can use a walker for short distances >>around the house, but need a wheel chair for distance/public use. By reading >>so >>many TM stories on this site I do not feel as alone with the pain, >>frustration, >>and just plain old bad days as I read other stories and puts my issues back >>in >>perspective. >> >> >>Thanks again to my TM family for always being there and sometimes that extra >>kick in the rear when the pity party starts! >> >> >>So a journey in life began, but the adventure continues >>Love and bless you all >> >>Kim/Atlanta >> TM T-10 >
