Thank you for your kind words. It really is good of Cyril to be a guinea pig for us all. sure hope it works.
On Wed, Jan 12, 2011 at 8:28 AM, Janice Nichols <jan...@centurytel.net>wrote: > This could be a wonderful happening for us TM’ers. If not, Cyril has > certainly done his best. I wish him the very best of luck. > Janice > > *From:* James Berg <molokai...@gmail.com> > *Sent:* Tuesday, January 11, 2011 6:32 PM > *To:* Cyril Mansperger <cyril.mansper...@gmail.com> > *Cc:* transverse myelitis <tmic-list@eskimo.com> > *Subject:* Re: [TMIC] CCSVI / Liberation Treatment > > I am very excited and hopeful and will stay in touch with you through > out your recovery period of several months. Email is my choice of > communication method and since I live over 6,000 miles from you (assuming > Albany means NY) in Hawaii. I am the only TM patient in the state and the > only one there has ever been. Neurologists here only knew of TM from > books. I am 63, one year with TM and do not want to spend the rest of my > life in a wheel chair. > > I just came across an article on CCSVI this morning and began researching > it. A light went off in my brain and I went back to my in-box looking for > your email. It really didn't mean anything to me when I first read it and > since I knew nothing about your question, I did not respond. I hope others > will now respond as well since what you are willing to do may help us all. > Even if the angioplasty does not work, please let me thank you for all of us > TM'ers for trying out a truly new approach to solving our problem. I will > be in touch within a couple of days of your surgery. Do you know how long > you might be in the hospital? I don't want to bother you there. > > Best of Luck from all of us at TMIC > > Jim > > On Tue, Jan 11, 2011 at 1:50 PM, Cyril Mansperger < > cyril.mansper...@gmail.com> wrote: > >> James, thank you so much for responding; I was getting the feeling that I >> did not exist. To date there have been a bit over a thousand angioplasties >> done in this country and I consulted with a group of interventional >> radiologists associated with Albany Medical Center. This particular group >> led by Gary Siskin md has performed about 485 of the total to date, on MS >> patients, as part of a study. I was introduced to them through a friend of >> mine with 35 years of MS. He has had considerable improvement in spite of >> the length of time he has been a victim and in only 2 months. >> I met with Dr.Siskin [he is on a u-tube speaking to colleagues] who >> was concerned about my expectations as he was unaware of the two cases of >> TM, I had heard of outside this country. I basicly said I have tried many >> different therapies since TM 3/1997 diagnosis and some resulted in more >> dramatic developments than others, but I was game for anything, whether no >> gains or even a little. It was worth the try, be it with him or the Greeks >> who performed it on the patient, I believe, from England. >> He said ok; however, I would be the first TMer in this country and if >> there is improvement he would wish to write it up in the appropriate >> journals and include it in his lectures, of course. No hesitation on my >> part. He also decided to do it only on the Azygous vein since I had no brain >> lesions. >> I am sceduled for February 4th @ Albany Med. I'm not real comfortable >> with Internet [I'm a slow typer]. Feel free to call: 845-797-9932 can >> leave a message, if no answer. >> >> >> >> On Tue, Jan 11, 2011 at 3:25 PM, James Berg <molokai...@gmail.com> wrote: >> >>> How are you doing? I have been reading up on this and we allneed to know >>> how it may or may not have helped you. >>> >>> >>> On Sun, Jan 2, 2011 at 6:36 PM, Cyril Mansperger < >>> cyril.mansper...@gmail.com> wrote: >>> >>>> Please, would anyone who has recieved the venogram with angioplasty >>>> performed on them contact me. I am going for a consultation Tuesday with a >>>> group of Interventional Radiologists to educate them as to the >>>> possibilities >>>> and I only know of two Patients to date that have had the procedure >>>> performed on them and with great success. >>>> Thank You. >>>> >>>> Cyril Mansperger 845 797-9932 >>>> >>> >>> >> >> > >
