After my initial--6 days on IV Steriods and I left the hospital a week later, the doctor gave me a vial of steriod pills to take if I felt the TM was reaching into my upper body, I suppose to stop it. I don't live near a hospital and have to be flown to one. Luckily I have never had a recurring episode but then again I have only been a TMer for two years. Unluckily I have no lower body function and am confined to a chair. 2 cent worth.
On Sun, Feb 19, 2012 at 1:44 AM, Dalton Garis <malugss...@gmail.com> wrote: > idiopathic: "a pathogen we idiots can't identify" > D. > > From: Bernie Pelow <bpe...@austin.rr.com> > Date: Sun, 19 Feb 2012 00:38:21 -0600 > To: TMIC <tmic-list@eskimo.com>, Dalton Garis <malugss...@gmail.com> > > Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 > > *Hey Dalton and all TM Family, > In my initial care 22 years ago, I was put on an IV drip of steroids for > my 2 month stay in the hospital. My immune system is shot; period. I have > to take all kinds of precautions to make sure I don't get sick. But it > happens now and again no matter how hard I try. My TM was called > "idiopathic" by some doctors, some said it came from the flu I had just > gotten over. Regardless of what it's cause was, when I get sick I start > feeling tingling in my hands and arms, upper abdomen and face. Every time > the treatment is a mass dose of steroids, as the doctors believe that is > recurring TM, I've had 5 episodes over the years. I have grown to hate > steroids, they make me miserable, cranky, I get insomnia, migraine > headaches, and I gain weight which is very hard to lose when your my age > and stuck in a chair. But if these drugs are keeping me from deteriorating > any further, I'll take them until my last days if need be. Just my 2 cents > of sharing... > Peace, > Bernie in Texas > PS - Sorry if the typing is large, my eyes have gotten real bad this past > year. > > > From: Dalton Garis <malugss...@gmail.com> <malugss...@gmail.com> > To: James Berg <molokai...@gmail.com> <molokai...@gmail.com>; > a...@artfarm.com > Cc: tmic-list@eskimo.com > Sent: Saturday, February 18, 2012 5:39 PM > Subject: Re: [TMIC] Re: tmic-digest Digest V2012 #91 > ** > * > *Yes;* > * > * > *I had four days of steroid drip in the beginning to reduce the spinal > inflammation and hopefully prevent any new lesions. But that was during > the initial stage when my spine seemed to be on fire.* > * > * > *But after that I only received a steroid drip during a "flair-up" about > six month's later, but no more often.* > *Pleas* > *Please try to see someone else if you can. You can go to "Webmd" to > search for a doctor who knows about TM/MS.* > * > * > *Best,* > * > * > *Dalton* >
