May I jump in here? My memory was becoming totally unreliable and my relatives were starting to worry. I read up on it and discovered that Lyrics causes memory lapses and a fight mind. So I cut down until I couldn't any more. My memory is better now.
-------- Original message -------- From: Pat Voorheis <pjv1...@chartermi.net> Date:03/12/2014 20:05 (GMT-05:00) To: James Berg <molokai...@gmail.com> Cc: Janice Nichols <jannic...@gmail.com>,Dalton Garis <malugss...@gmail.com>,Linda Egli <le...@sbcglobal.net>,transverse myelitis <tmic-list@eskimo.com> Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii James, Please tell me why you want to reduce to 50mg twice daily after consulting with Sandy. I was taking 100mg 3 times daily for about a year, but reduced to twice daily due to cost, not due to medical reasons. Is there something about Lyrica Sandy made you aware of that I should be concerned about? As you both have stated, we learn more from the TM Association than we learn from our doctors and Neuro's. Patti - Michigan On Mar 12, 2014, at 3:34 PM, James Berg <molokai...@gmail.com> wrote: Hey Dalton and everyone else, Aloha. I just want folks to know that thanks to Dalton letting me know about Lyrica, I've gotten control of my leg spasms. I'm taking 150mg. 2 times a day and suddenly a week ago my spasms stopped! Not having a neuro so consult with Sandy, yes our Sandy, has been counseling me about stopping the Lyrica and after discussing it with my GP I am doing a gradual reduction and will soon be down to the 50mg. Dalton has reduced to. Lyrica has been a god send to me. Thanks Dalton. Jim On Wed, Mar 12, 2014 at 7:48 AM, Janice Nichols <jannic...@gmail.com> wrote: Dalton - not offended!! So glad you are doing so well. Isn’t it strange the things we discover ourselves that help us? Doctors can still be so clueless about some things - on the other hand, they can save our lives! Janice From: Dalton Garis Sent: Wednesday, March 12, 2014 11:26 AM To: Linda Egli ; tmic-list@eskimo.com Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii Say, Folks! Nice to hear a voice crying in the wilderness. I am still here, also. By the way, someone hacked my Facebook so had to change my name, to Abdu’l-Hanif Al-Shukri – let them try to hack that one! So, if you remember me, for instance Meiling, and you want to “friend" me, I’m still out there. Friends, I am down to just 50mg Lyrica 2x/day now, after a tough time of trying. Can’t go below that amount, discovering that is what is actually required to cover most of the pain. My memory is better and am less anxious about losing my mind to fog and dopiness. And went 28 days without a seizure, the longest time since getting the first one in 22 April 2010. Want to know what reduced their frequency? - not taking all those vitamin supplements anymore. It seems the minerals in them were interfering in some way with the nerves, especially magnesium. Visiting my mother in Massachusetts – she’s 97 – I forgot to bring any and went without for a week. Returning home I realized that I hadn’t had any seizures, and guessed that the only change was in not taking all those vitamin supplements. So I stopped, and sure enough, the seizures became very infrequent. Who knew? Now is the Baha’i month of the Fast, when Baha’is go without food and drink during the hours when the sun is in the sky, for 19 days, the last month of our year. (In our calendar there are 19 months of 19 days, with 4 or 5 inter calendar days just before the month of the Fast). We eat and drink after sunset or before sunrise but not during the hours of sunlight. Smoking is also prohibited, as it is considered a form of drink. The sick, the traveling, those nursing or pregnant, or under the age of 15 or older than 70 are not bound by the Fast; neither are those engaged in heavy labor. It is for those in good health, but others are not bound to it. While not bound by the Fast I am going without food during the hours of fasting but drinking tea or coffee or water whenever I feel the need. It is going OK, and does change the relationship to the material world and increase nearness to God. I am grateful to participate at even this level. I hope it doesn’t upset anyone if I talk openly about God. It seems our America is conspiring to wipe any mention of Him from any public discourse – a kind of propaganda in its own right if you think about it. I apologize, though, if anyone here is offended. Love and prayers, Dalton Abdu’l-Hanif Al-Shukri Dalton Garis Flushing, Queens New York, USA From: Linda Egli <le...@sbcglobal.net> Reply-To: Linda Egli <le...@sbcglobal.net> Date: Wed, 12 Mar 2014 07:45:18 -0700 (PDT) To: "tmic-list@eskimo.com" <tmic-list@eskimo.com> Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii Resent-From: <tmic-list@eskimo.com> Resent-Date: Wed, 12 Mar 2014 07:45:20 -0700 (PDT) Another TMer still here too. I miss the people that used to use this site. Stay well. Linda - Texas From: Janice Nichols <jannic...@gmail.com> To: James Berg <molokai...@gmail.com>; tmic-l...@eskimo.net Sent: Wednesday, March 12, 2014 9:39 AM Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii You are not alone here. <wlEmoticon-smile[1].png> I am still here, but it sure is quiet! Hope you are doing well. Janice – from Missouri From: James Berg Sent: Wednesday, March 12, 2014 1:52 AM To: tmic-l...@eskimo.net Subject: [TMIC] Meiling Caperton, Kanohe, Hawaii Meiling, if you are still in Hawaii, please give me a holler--I thought I was alone here. Jim
