Joyce: Thanks a lot. And yeah, as soon as she woke up at 4:30am this morning in severe pain, and couldn’t get a deep breath, we didn’t worry about driving to the ER, but called 911 and got her there in an Ambulance. She is feeling a little better tonight. She has a great doc who even though we may not see her but once a day, keeps in touch with the nurses station all the time, cause she put my wife on new meds all day, as well as ordering new X-Rays, blood tests etc. My wife has been coughing up little specks of blood and that scared me to death, but they are telling us that that is a GOOD sign because it needs to get all that out of her lungs, which is why her doc started ordering breathing treatments 2-3 times a day now. To get that stuff coughed up, and to ward off pneumonia even though it hurts really bad to cough. And the nurse my wife has tonight just got over this SAME thing herself and in fact, JUST came back to work a week or two ago, and she said that YES. it hurts BADDDDD. And she said that too, that it has been a long road to total recovery. I’m just glad she had a doc and nurses who are caring, and take time to explain what’s going on, and just seem to genuinely care in general. Thanks a LOT for all the info. Many ppl don’t want to hear all the ‘gory details” but we are just the opposite. We like to know what we might expect both good and/or bad. Thanks again, Chuck
From: Joyce M Westphal Sent: Tuesday, May 28, 2013 8:11 PM To: vfb-mail@googlegroups.com Subject: Re: [VFB] Question for everybody about blood clots?? I forgot to mention, with regard to the pain. You will get an idea of what hypoxic pain is like, for that is what the pain from blood clots is, pain that blocks oxygen to areas of the lungs, if you will tie a string tightly around your finger and see how painful it is as your finger turns blue. Interestingly, one of the methods of torture during the inquisition was to place tourniquets on the limbs and watch the victim suffer. When we know that we will have to use a tourniquet on a limb for foot surgery, we place the patient under general anesthesia because hypoxic pain is very severe. Even under an anesthetic, after about 1/2 hour with the tourniquet, the blood pressure begins to rise and Fentanyl, our most reliable and potent adjunct, doesn't really control the response after 1-2 hours. So yes, the pain is severe, but she must note whether the pain areas or quality of pain changes as well..in short, does she have sudden increase in, or a much more intense pain or a new area that suddenly or even gradually becomes more painful. Hope this helps and prayers continue. Recovery is very possible, but long and painful. Joyce On Tue, May 28, 2013 at 7:06 PM, Joyce M Westphal <joyce...@gmail.com> wrote: My brother in law suffered from them for almost 3 months, As previously stated, the coumadin only prevents new ones from forming, the old ones have to slowly dissolve by themselves. Watch her carefully, however. If she suddenly has a marked increase in pain or shortness of breath, get her to the ER right away as sometimes a clot can move and block a new and more important area of the lung or heart. Having said that, and not to scare you, but our anesthesiologist simply bumped his shin on a bed at home, a small bruise, he thought *(and remember, he's an MD) . He ended up with full blown septecemia after a pneumonia, respiratory distress syndrome, then into total organ shut down, dialysis to try and save his kidneys and ICU intubated for a week, in ICU, then Intermediate care for another two weeks and it has taken him six months to even begin to feel better. Incredibly, he did survive, thanks to modern medicine and great doctors. So, as previously stated, watch her carefully and if you have any concerns, don't be afraid to go back to the ER and demand they take another look. She should have another followup X-ray in about 2 weeks. Joyce On Tue, May 28, 2013 at 5:06 PM, <rx4fish...@nycap.rr.com> wrote: Chuck, Clots in the lungs can be very painful and the pain can last for a few days. Even though she is being treated, the clots are still there, they just don't go away overnite. The coumadin just prevents more clots to form, it is up to the body's own defenseses to get rid of the clot. And that can take quite some time. So it is a long process to recover from... Ron ---- Chuck Alexander <chuckalexan...@centurylink.net> wrote: > Folks: Here’s the situation on my wife. The doc came in just a little bit ago and said the X-Rays etc showed that the blood clot(s) had evidently not completely dissolved and passed from the other day. She had told us outright the other day that since my wife’s new to her job and has no insurance, that she was sending her home a day or two earlier than had she had good insurance. Ain’t that how it goes??? Anyway, to quote my wife this morning “This is more painful than having a baby”. And it’s going to get worse before it gets better according to the doc because they are having to give her breathing treatments, to ward off pneumonia, because she tries to hold back the coughing and deep breathing because it hurts a lot worse to breath deeply or to cough. But, the doc says that she MUST cough to get the lungs clear both of the clots and to stop pneumonia. They now have her in dilaudid (sp) for pain. > > Now, my question for everybody is this. Or at least to anybody who may have ever had a blood clot in their lungs. Are blood clots REALLY that painful??? I mean, I know they are, cause my wife has a high threshold for pain, but is the doc being totally honest in that THAT is what is causing THAT much pain??? The doc says that THAT much severe pain is “normal” in having and/or getting rid of blood clots. Is the doc being totally honest??? If so, how long should the pain last from the onset of treatment??? I know everybody is different, and the number, size, and location of the clots all play into it, but this has me worried that the doc isn’t being totally honest about this??? Thanks for ANY answers in advance. 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