I am a 55 male with two children...16 and 11.  I was diagnosed last
week...but have few outward symptoms...and am wondering what I
should tell the kids.  I do not want to alarm them terribly...but
would appreciate advice from anyone that has dealt with this.
 
Hello,
     Think of the questions they may have and the possible answers.  In Example: the treatment plan, the prognosis depending on which phase you are in, etc...  My children were older.  I am now 41 and was diagnosed January 12th, 2002 and by taking 600 mgs. Gleevec am currently PCR negative.  My oldest son was 22 at the time and he and his wife were going in for delivery of their first baby in 5 days.  So we decided to wait until after the first grandchild was born to tell the children so as not to spoil the good event.  At the time when I was attending the birth, I didn't know how much time I would get to spend with this little baby.  Now, she is 2 1/2, her sister is 1 1/2 and my other son has a 2 year old also.  The best thing about taking a couple of weeks to tell the children was that it gave me time to research the disease so I better knew what I was dealing with, plus it gave me time to have my own emotions under control.  I don't suppose this is really advice, just sharing what I did but perhaps it will help somewhat.
    Do remember to try being positive but always truthful about what is known.  Look forward to spending many years with them, yet spend each day as if it were the last.  If there are any benefits to CML it is discovering where our priorities really should be in life.
Blessings,
Lisa in NC 


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