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I am a 55 male with two children...16 and 11. I was diagnosed
last
week...but have few outward symptoms...and am wondering what I should tell the kids. I do not want to alarm them terribly...but would appreciate advice from anyone that has dealt with this. Hello,
Think
of the questions they may have and the possible answers. In Example: the
treatment plan, the prognosis depending on which phase you are in, etc...
My children were older. I am now 41 and was diagnosed January 12th, 2002
and by taking 600 mgs. Gleevec am currently PCR negative. My oldest son
was 22 at the time and he and his wife were going in for delivery of their first
baby in 5 days. So we decided to wait until after the first grandchild was
born to tell the children so as not to spoil the good event. At the time
when I was attending the birth, I didn't know how much time I would get to spend
with this little baby. Now, she is 2 1/2, her sister is 1 1/2 and my other
son has a 2 year old also. The best thing about taking a couple of weeks
to tell the children was that it gave me time to research the disease so I
better knew what I was dealing with, plus it gave me time to have my own
emotions under control. I don't suppose this is really advice, just
sharing what I did but perhaps it will help somewhat.
Do remember
to try being positive but always truthful about what is known. Look
forward to spending many years with them, yet spend each day as if it were the
last. If there are any benefits to CML it is discovering where
our priorities really should be in life.
Blessings,
Lisa in NC
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