Lynne, It is such a relief to know that someone, somewhere really does
know how I feel. I try not to complain around my family but sometimes
it just subconciously comes out without me wanting it to. It's hard to
be strong for the sake of others when you feel so bad so much of the
time(like every minute that you are awake). I just get sick and tired
of being "sick and tired". I have always been such a active person,
most times working 2 jobs and doing things with my children,
occassionally going out, always loved to entertain friends and family
and now I can't even do basic house cleaning around my home. The
emotional part of living with cml is taking me down as well as the
physical part of it. And I have always been a fighter, and now I don't
have the energy to fight. I live in fear that the cml is going to take
me out, and how unfair to have to spend your last days like this.
Sometimes it just overwhelms me. And it's not just the cml, you've got
all the other stuff in life going on. My husband left me about 2
months after I was dx'd, which we did get back together after a 6
month seperation but things just aren't the same anymore for either of
us, and I don't have the energy to devote much to the relationship if
you know what I'm saying. So the cml and gleevec have changed my life
in every way possible. And when I'm not hiding in the bathroom crying,
I'm mad as hell at the world. I feel as though something inside me has
died. Nothing interests me....not even Christmas. I could probably
force enough energy over several days to decorate for Xmas but just
have no interest. I am depressed and I was taking lexapro but my
primary doctor changed it to Paxil CR just this week. I type all of
this about myself and when I reread it, I can't believe I am burdening
everyone with my problems. I have never been one to complain like
this. Forgive me but thank God you're here!

Lynne, thank you and  all the others for all the info. My main concern
is: you basically have to pack up and move to where ever the trial is
located and I don't know if I could afford fininacially to do that.
How long do you have to stay? I am on disability and living from one
month to another on SS.

Sorry for the long post. Love, Peace, & Hope, Pat









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