gbengston wrote: > Anjana, OHSU is where I really want to go. My mother on the other hand > thinks that if a bone marrow transplant is inevitable, then we should > go to Hutch. She thinks that since I have a local oncologist and a doc > at Emory(Atlanta), we would be involving too many people if I go to > OHSU and then on to Hutch. I disagree with her and think that if we see > OHSU they might try a different approach. We also have to consider that > we are living on Social Security Disability, and finances play a big > part on where I go. I wish it didn't have to be that way.
If you are seriously contemplating a BMT, then order a 300-page book from the National Marrow Donor Program called "Choosing a Transplant Center: A Patient's Guide." It's free. Not only will you learn details about individual centers, but there is also quite a bit of information about how to obtain financial help. Go to ww.marrow.org or call 888-999-6743. Among ohther info, you can find out how many transplants each facility has done for CML patients and what the survival rate has been. Then Google "bone marrow transplant" and you wil find many, many useful references. Be aware that there are a few centers that are free for those who can't afford to pay, for example, City of Hope. I don't know your age, but if you are old or young, then you want to find a center that spoecializes in transplants for people your age. Emory and OHSU each do around 100+ transplants a year. The big centers that do 500+ transplants annually are the Hutch, City of Hope, Sloan-Kettering, MD Anderson and Dana-Farber. (Apologies if I've missed some). Maybe your mother is right. Keep in mind that there is no need to get a transplant done in the same facility that your Dr. is located. You want to go to the best Dr. you can find, and, if he/she recommends a transplant, then you should shop for a place to have it done. Mike Burwen --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
