[CMLHope] Re: Ok this is what I learned yesterday....

Tue, 26 Sep 2006 11:55:49 -0700

Hi Germaine,
 
It is time to see a CML expert. These doctors have seen many cases of CML with Trisomy 8 and have treated them. In most cases it goes away over time. This list can help a bit, but we are not medical doctors here. You must see a CML specialist or as a minimum have your doctor discuss it with one of them.
 
I don't know where you are located, but here are the specialists that I would contact.
 

Top CML Doctors

 

Dr. John Goldman                  [EMAIL PROTECTED]

Dr. Moishe Talpaz                 [EMAIL PROTECTED]    734-764-8195

Dr. Brian Druker                  [EMAIL PROTECTED]     503-494-5596

Dr. Charles Sawyers               [EMAIL PROTECTED]

Dr. Michael Mauro                  [EMAIL PROTECTED]      503-494-0376 

Dr. Andreas Hochhaus              [EMAIL PROTECTED]

Dr. Tim Hughes                                          0861 822 2400  

Dr. George Demetri                [EMAIL PROTECTED]

Dr. Stephen Nimer                 [EMAIL PROTECTED]

Dr. Hagop Kantarjian              [EMAIL PROTECTED]

Dr, Richard Stone                 [EMAIL PROTECTED]

 

See http://www.cmlsupport.com/cmldocs.htm   for an expanded list

Zavie

 



 
On 9/26/06, gbengston <[EMAIL PROTECTED]> wrote:

Ok here is what the doctors told me.

Out of 20 cells, 2 of them are PH+, 9 are normal, and 9 have TRISOMY
8!!!!

They said they aren't sure what to do now, there have been a few cases
of CML after being treated are sprouting this new chromosone
abnormality. There is no treatment for Trisomy 8.  The doctor seemed
extremely concerned about the next step. She wants to do a complete
physical and then figure out what to do. All the tests were performed
on my bone marrow. I have the report right here of course reading it is
like trying to read another language...lol. Now I am getting scared.
Has any one ever heard of Trisomy 8 in CML?  Thank yall for all the
support in everything....

Germaine
dxd 10/2003
CML PH+





--
Zavie Miller (age 68)
67 Shoreham Avenue
Ottawa, Canada, dxd AUG/99
INF OCT/99 to FEB/00, CHF
No meds FEB/00 to JAN/01
Gleevec since MAR/27/01 (400 mg)
CCR SEP/01. #102 in Zero Club
PCRU 5/02 at RVH
2.8 log reduction Sep/05
3.0 log reduction Jan/06
e-mail: [EMAIL PROTECTED]
Tel: 613-726-1117
Fax: 309-296-0807
Cell: 613-202-0204
Yahoo ID: zaviem
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