Hi Pat Good to hear from you. I was gramma for the first time Dec. 6 last year. It is awesome! Congratulations! Have you thought about switching drugs to sprycel? I understand the side effects are not so severe. Gleevec is still playing havoc with me after 5 years ( June 11) and I am on a 300 m dosage. I understand how you must feel. Menopause is also a nusiance with me as well! So if nothing else, I send along my sympathies! It was good to see your post. Be well. Barb
On Jun 23, 6:41 am, "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: > Hello to all my friends and family. I hope everyone is enjoying the > summer season and their health as much as humanly possible. I still > read the posts every 2 or 3 days but I notice activity is still > considerably low compared to when I came on board in 2004. > I don't have much input anymore...for 2 years I was constantly glued > to the computer reading everything I could find about CML and this > group was my main page for info which I am so grateful for. I'm slowly > trying to wean myself from reading anymore as I guess I know all there > is to know...it's like reading the same book over and over but my > heart goes out to all the newbies...and to all of us oldies too so it > keeps me interested enough to keep reading the posts. I don't feel > like I can explain things to the newbies as well as some of the > others, so I just remain silent but you all are still in my thoughts > and prayers, and I still cry when a newbie joins or an older member is > struggling. > I still feel tremendously blest that if I had to get something, it was > CML and there was Gleevec to keep me alive....I want to live for my > family and when I say that I think of the song, The Dance, but I will > say this I have paid one hellava price and suffered to the point that > sometimes I just don't know if it's worth it. Gleevec has played havoc > with my life. I must say that the side effects are not near as severe > as in the first year and a half but they have never went away. It's > something about it, it just doesn't set well with my body. I still > have no appetite, it still makes me sick, my bones hurt, I get cramps > all over my body, my head hurts constantly, I'm nauseated and I am > taking other meds for all the side effects, of which dosages have been > increased over time. I literally force down what I eat just to take my > meds but I have no desire for food. And in spite of this, I am > starting to gain weight. My stomach stays bloated and it is such > misery. My daughter is 5 months pregnant and I look as pregnant as she > is. (By the way, the anticipation of being a grandmother has been the > best thing to happen in my life for quite a while; REALLY EXCITED!) > And as if the CML isn't enough to deal with, I'm also struggling with > COPD and menopause. I'm more terrified of the COPD now than I am the > CML and the menopause is really taking over my life. > Well, I stopped by to let everyone know I was thinking of them...and > to let you know I'm still a CML warrior, and really didn't mean to do > all this venting....sorry! I know things could be a lot worse, and I > still have a lot to be thankful for but it would be so nice to just > "feel good" every once in a while. The spring and summer I love so > much...and all winter, it's all I think about...and it is so hot and > humid here where I live > I can't get out much except around 7pm or later because I can't > breathe. > Keep the faith, Keep up the fight..... > Love, Peace, Hope & Prayers, Pat Reynolds --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
