Hi Jeanie, Thanks for writing. I love your e-mail address, I am a Christian also. The onc did not try a lower dosage as since having brain bleeds is so serious, he didn't want to risk it, and at the time I chose not to risk it. He wanted me to go on sprycel but I refused. Now after I test again and see my numbers I will decide after almost two years if I want to risk it again. Don't really have much choice if the numbers are rising. Tasigna sounds really dangerous for me with my background, as I have high cholesterol and I was warned by my doc that it causes fluid around the heart in most patients. My doctor treats 200 patients a week who all have CML. He is at Moffitt Cancer Center in Tampa. I figure he knows what he is doing, but I chose to disobey him until now. Thanks again for writing. This sign-up has been really helpful but distressing about so few options with my particular problem. Blessings, Susan
Be imitators of God, therefore, as dearly loved children and live a life of love, just as Christ loved us and gave himself up for us as a fragrant offering and sacrifice to God. --Ephesians 5:1-2 In a message dated 3/14/2009 10:30:05 A.M. Eastern Daylight Time, icandoall...@aol.com writes: In a message dated 3/13/2009 1:56:26 A.M. Eastern Daylight Time, Hi Susan, I pray they will find something that will work for you. I have found that the nilotinib (Tasigna) has been the best for me so far. Did you onc try a lower dose of Tasigna? Blessings, Jeanie<3 rszim0...@aol.com writes: I just found this site. Have had cml since feb 14, 2005, (great Valentine's Day present) and have been off all meds since March 2007 because of a brain bleed. I tried nilotinib and one dose gave me an eye bleed so can't take that either. Dasatinib will probably do the same thing, so I am not taking anything. At this point my counts have been stable in cellular, but not in molecular remission. What do you think? Susan/Rejoicer ____________________________________ A Good Credit Score is 700 or Above. _See yours in just 2 easy steps!_ (http://pr.atwola.com/promoclk/100126575x1220439616x1201372437/aol?redir=http://www .freecreditreport.com/pm/default.aspx?sc=668072&hmpgID=62&bcd=febemailfooterNO 62) **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220439616x1201372437/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
