I have never heard of the shampoo idea. I am like you those are about the two main things I have problems with. I have been on Gleevec for about a year also. Just had my one year BMB done last week and waiting on results. My six month one was barely detectable so I am praying for good results this time also. Sent via BlackBerry by AT&T
-----Original Message----- From: perk <perkuss...@msn.com> Date: Mon, 27 Jul 2009 11:27:04 To: CMLHope<CMLHope@googlegroups.com> Subject: [CMLHope] Re: LOW ENERGY I cleaned around my eyes with "No Tears" baby shampoo and it helped the eye edema. I've been taking Gleevec for a year now and find living with the minor inconveniences a much better alternative than dying from CML. Even with the "green apple trots" (diarrhea), I just think of all the constipated people who would be envious to be in my shoes or on my throne. People in general, are tougher than they think they are and can withstand a great deal of abuse. Even with the discomforts Gleevec offers, it has allowed me to continue to work and enjoy life and even hide my disease from co-workers and the public. Without Gleevic, I don't think CML would have allowed me to live in this manner and the discomforts would be much worse. I'll take every day I can get, even if I have to occassionally "trot" to the bathroom. Trotting in Texas J.D. On Jul 25, 7:07 am, Sandra Wells <nannyg...@bellsouth.net> wrote: > Dear CML Warriors > > I have been on Gleevec almost six months now. Of the 34 side effects that I > know of, I have had 31. Most only lasted a couple of weeks and haven't been > that bad. I have even conquered the diarrhea and muscle spasms which were > the most debilitating with the help of diet changes and supplements. I still > have eye edema but even this seems to be improving. > > The two side effects that have been constant are low energy and shortness of > breath. Both of these I have had even before I started the Gleevec and could > have been the CML. My question is "Do these side effects improve and how > much longer should I expect to have to cope with these?" > > Both my doctors are vague about this and don't seem to have any answers for > me except to try another drug. My dilemma is that I am in total remission on > Gleevec after only six months, and I really do not want to try another drug > just because I am "tired" or having "trouble breathing". > > Hoping for some sage advice from my fellow warriors and hearing from you soon. > > May God Bless You All, > > Sandy --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
