Hi HHT is homoharringtonin.There are several trial groups around. It is a self
injected drug based on a 28 day cycle. I am on the drug for 5 days out of the
28. The drug keeps my counts in range although I am still 100% phillies
----- Original Message -----
From: myvet...@aol.com
To: cmlhope@googlegroups.com
Sent: Wednesday, June 30, 2010 12:42 PM
Subject: Re: [CMLHope] Hi group
Good question Tom, I was thinking the same thing. greenie
In a message dated 6/30/2010 9:41:33 A.M. Central Daylight Time,
ted...@aol.com writes:
John...what is HHT...I googled it and got lots of hits...but none related
to CML. Tom in KY
In a message dated 6/29/2010 8:59:26 P.M. Eastern Daylight Time,
jl...@rogers.com writes:
Hi there. I have had cml for 10 and 1/2 yearsnow. Failed gleevec, and
sprycel. Now I am on HHT and I understand that ariad is the next good one.
There are many others being workedJohn
----- Original Message -----
From: myvet...@aol.com
To: cmlhope@googlegroups.com
Sent: Tuesday, June 29, 2010 11:42 AM
Subject: Re: [CMLHope] Hi group
Thanks Jeanie.
In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time,
icandoall...@aol.com writes:
Hi Greenie and sorry for your problems. If you know my story you
know that Gleevec quit working for me after 5 years. I started taking Tasigna
and it only worked for 8 months and I am now on Sprycel, the last drug out
there for CML.
Don't worry, you can get help for the other drugs if you have to take
them. I worried every time I had to change drugs but they always get paid for.
Let us hope it was just a bloop in the test and pray for the best.
Good luck,
Jeanie<3
In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time,
myvet...@aol.com writes:
Hi, I've noticed the same thing about less mail. I had blood work
at Northwestern Hosp. in Chicago June 2nd. and my new Doctor called me to let
me know that cancer cells were showing up in my blood. I've been in a study
beginning Feb 5, 2000 and now after all these years I'm having problems. She
wants me back June 30 for more blood work, if their is no change then she wants
to do a BMB. Of course she told me not to worry, yea sure. She said, their
are other drugs out their that we can use. But she didn't know that I get my
Gleevec for free from Northwestern. That I'm grand fathered in for life. Some
of these Doctors have no idea what's going on, their in their own little world
and don't have cancer. They just go to work each day, spend 3 min. with you in
a room and out the door. Their are some good Doctor's out their that will
listen but this one I have now, she's got to go. I'm going to ask for a
different one on my next visit. Sorry lady, don't mean to hurt your feelings
but you just don't understand.
Greenie
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