Hi, I've noticed the same thing about less mail. I had blood work at Northwestern Hosp. in Chicago June 2nd. and my new Doctor called me to let me know that cancer cells were showing up in my blood. I've been in a study beginning Feb 5, 2000 and now after all these years I'm having problems. She wants me back June 30 for more blood work, if their is no change then she wants to do a BMB. Of course she told me not to worry, yea sure. She said, their are other drugs out their that we can use. But she didn't know that I get my Gleevec for free from Northwestern. That I'm grand fathered in for life. Some of these Doctors have no idea what's going on, their in their own little world and don't have cancer. They just go to work each day, spend 3 min. with you in a room and out the door. Their are some good Doctor's out their that will listen but this one I have now, she's got to go. I'm going to ask for a different one on my next visit. Sorry lady, don't mean to hurt your feelings but you just don't understand. Greenie In a message dated 6/22/2010 4:39:21 P.M. Central Daylight Time, margoo...@aol.com writes:
Hi Greenie: This is Marcie in Baltimore. I have not received any undesirable mail from you either. I'm a relative newcomer to the group. The main thing I notice is that there seems to be less traffic between all of us. Hope everyone is doing well. I was dx in March '09, 400 mg Gleevec, did well until February '10 and got bumped up to 600 mg. Getting used to the higher dose was just like starting out new, very difficult, but my numbers are greatly improved. I have needed red cell infusions due to the Gleevec and I just found out that my throid is out of whack, unrelated to the CML. All in all, I am so grateful to have an illness that is manageable. Best wishes to all of you and thanks for always being so supportive of our group. -----Original Message----- From: C.M. Houtz <ho...@ptd.net> To: cmlhope@googlegroups.com Sent: Tue, Jun 22, 2010 4:53 pm Subject: Re: [CMLHope] Hi group Hi Greenie....Hope that this finds you well....or as well as any of us can be. I haven't received any xxx rated mail from you. In fact my mail is working just fine. I get most of the things sent out, if not all. I went on facebook, but got off fast as I was getting unsolicited mail from different men, and this 71 year old lady doesn't need that. I actually didn't put my information out on it, but decided it wasn't something I wanted to participate in. I never did connect with any of the CML people. Oh well....Hope that this gets through to you okay. Millie ----- Original Message ----- From: myvet...@aol.com To: CMLHope@googlegroups.com Sent: Saturday, June 19, 2010 7:53 AM Subject: [CMLHope] Hi group For some odd reason some sort of unwanted mail is going out to people in my address book. Some of the mail is mail that I wouldn't sent to anyone. I don't know how this happened but I must have received some spam, etc. I've reformatted my computer but that has not helped. I have friends that send me mail that I would not send out to anyone if you know what I mean. I've send them back telling them Not to send me anything that xxx rated. I hope that nothing like this has gone out to our CML web site. I seen to have stopped getting any mail from our CML site and I don't know why. greenie -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
