Oh wow! My daughter has PAH and it is a very scary diagnosis. She has PAH secondary to a congenital heart defect. She also has sleep apnea, which has exaccerbated her pulmonary artery pressures. May I ask what your pulmonary artery pressures are? My daughter's pulmonary artery pressure is double what it should be and has been double for 6 years. There is likely no reversing it, unless a cure is found, but in 6 years, it has not gotten any worse and she has no external symptoms. Due to her other health issues, there's no way she'd ever qualify for a heart and lung transplant either, but so far, God has really kept her safe despite these very elevated pressures.
Praying for you and for them to find a good treatment plan for you with the PAH. And, I am ALWAYS praying for a cure for PAH!!! -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
