Hi Kelly, Of course it is a good thing. By the way, to really set your mind at ease; your not dying from this. Stay out of the way of speeding busses however...You just go on and live your life and enjoy it.
Now you really know the meaning of 18's 18's Kelly Marty On Tue, Nov 1, 2011 at 7:43 PM, kellyelise <kellyeli...@aol.com> wrote: > Thank you Marty and Susan, > > You have provided me with some relief....wow, Susan, 200mg every other > day? That is great!! I am so glad you are doing well with that. I > understand the translocation of the chromosomes which results in the > Philadelphia chromosome but I didn't really understand what it meant > as far as my prognosis.....so, I guess the absence of the chromosome > is a GOOD thing!! > > Thank you all for your support!! > > 18s, > Kelly > > On Oct 31, 11:17 pm, Martin Gartenberg <wa2...@gmail.com> wrote: > > Hi Kelly, > > > > Let me explain about The Philadelphia Chromosome. I know that it may be > > complicated for you to understand but here is a site that can explain it. > > > > http://www.medterms.com/script/main/art.asp?articlekey=4870 > > > > The new drugs inhibit the transfer of genetic materials between two > > specific Cromosomes and that is what the Philadelphia Chromosome is. > > > > PCR stands for polymerase chain reaction it is a very sensitive test > that > > can tell what is going on with CML > > > > When someone is PCRU that means that there can not be detected any CML in > > your cells. > > > > Kelly, don't you worry. You just hang in there and you must remember > > without any of these new drugs, well you know what I mean. > > > > You must consider yourself very lucky (if that is the right word to use) > > None of these drugs were available for me when i had to deal with that > bone > > marrow transplant. > > > > You just go out there and enjoy your life > > > > 18's > > > > Marty > > > > > > > > On Mon, Oct 31, 2011 at 9:24 PM, kellyelise <kellyeli...@aol.com> wrote: > > > Marty...tweet, tweet? Ha ha ha!! You are so funny!! > > > > > Anyway....My PA from MDAnderson in compliance with Dr. Cortes have > > > allowed me to take Tasigna @ 200mg daily. It is less that the > > > recommended dose but they are hoping to lessen side effects but at the > > > same time put the CML back under control. I "think" she said my PCR > > > was 0.333% (does that make sense?). I have never come out of remission > > > in 4 years until now (boo!). She also said I am showing no evidence of > > > the Philadelphia chromosome. I have no idea what this all means since > > > I cannot retain anything, but, I am hoping it is good news. > > > > > Any advice, knowledge, etc., would be greatly appreciated. I am > > > currently in the market for a heme/onc and will be looking 50 miles to > > > the West (Cleveland, OH) or 50 miles to the East (Erie, PA). I asked > > > my NP at CCF for some guidance and hopefully she can provide some. > > > > > 18s to everyone! > > > Kelly > > > > > -- > > > [CMLHope] > > > A support group ofhttp://cmlhope.com > > > ------------------------------------------------- > > > > > You received this message because you are subscribed to the Google > Groups > > > "CMLHope" group. > > > To post to this group, send email to CMLHope@googlegroups.com > > > To unsubscribe from this group, send email to > > > cmlhope-unsubscr...@googlegroups.com > > > For more options, visit this group at > > >http://groups.google.com/group/CMLHope- Hide quoted text - > > > > - Show quoted text - > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
