I didn't do good on tasigna all. Had to have blood transfusions and then it quit working for me. I was put on sprycel and it put me on remission in 3 months. Good luck Jeanie Sent from my iPhone
On Mar 23, 2013, at 10:53 PM, Penny <boogie_woo...@yahoo.com> wrote: > Hi, > > How do you know if you have had a brain bleed. I just started on Sprycel 2 > weeks ago... Penny > > On Tuesday, November 1, 2011 1:22:54 PM UTC-6, rszi...@aol.com wrote: >> >> This is great news about Tasigna....! I spoke yesterday to a doctor in >> charge of a clinical trial. He advised me with my history of bleeding in >> the brain to NEVER take sprycel, said it is well known that it causes >> bleeding. All my other doctors have been wanting me to go on it! He >> advised tasigna only, as it is the only one that does not have the slight >> side effect for those who are prone to have bleeding. Very very important >> news for me, as I've not been on anything for four and a half years. >> Gleevec caused bleeding. I am going soon for another bcr/abl test, it's >> been a year. I am so thankful I'm still in cellular remission. This doctor >> yesterday said don't wait until you come out of remission because you could >> go into blast phase. Pray that things come together for me financially to >> do this. By the way, what side effects come with tasigna??? >> >> 18's, >> >> Susan F. Zimmerman >> >> >> -----Original Message----- >> From: Suzan Collins <skrac...@yahoo.com> >> To: cmlhope <cml...@googlegroups.com> >> Sent: Mon, Oct 31, 2011 9:39 pm >> Subject: Re: [CMLHope] Tasigna >> >> Hi I don't post much. I was dxed in June 2004. I had never reached all zeros >> before and it always stayed around .004. I had so much trouble with severe >> side effects from gleevec and sprycel and sprycel also gave me skin ulcers. >> So he put me on tasigna . I have been on tasigna for nearly 2 years and >> from the beginning I continued to have trouble with bad side effects two >> months later. So my doctor decided to put me on 200 mgs once every other >> day. The side effects declined immensely and my last fish test was all zeros >> so even though it is only 200 mgs every other day tasigna has kept my CML >> under control. So good luck. I hope that you can get they same results that >> I have. >> Suzan >> >> From: kellyelise <kelly...@aol.com> >> To: CMLHope <cml...@googlegroups.com> >> Sent: Monday, October 31, 2011 8:24 PM >> Subject: [CMLHope] Tasigna >> >> Marty...tweet, tweet? Ha ha ha!! You are so funny!! >> >> Anyway....My PA from MDAnderson in compliance with Dr. Cortes have >> allowed me to take Tasigna @ 200mg daily. It is less that the >> recommended dose but they are hoping to lessen side effects but at the >> same time put the CML back under control. I "think" she said my PCR >> was 0.333% (does that make sense?). I have never come out of remission >> in 4 years until now (boo!). She also said I am showing no evidence of >> the Philadelphia chromosome. I have no idea what this all means since >> I cannot retain anything, but, I am hoping it is good news. >> >> Any advice, knowledge, etc., would be greatly appreciated. I am >> currently in the market for a heme/onc and will be looking 50 miles to >> the West (Cleveland, OH) or 50 miles to the East (Erie, PA). I asked >> my NP at CCF for some guidance and hopefully she can provide some. >> >> 18s to everyone! >> Kelly >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> >> >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
