You might get numb on one side kind of like a stroke. What are your symptoms.
Sent from my iPhone On Mar 23, 2013, at 11:27 PM, patrickemailguard-g...@yahoo.com wrote: > > Penny, if something was making me wonder if I was having a brain bleed I > would be on my way to the ER. > Patrick > > --- On Sat, 3/23/13, Penny <boogie_woo...@yahoo.com> wrote: > > From: Penny <boogie_woo...@yahoo.com> > Subject: Re: [CMLHope] Tasigna > To: cmlhope@googlegroups.com > Date: Saturday, March 23, 2013, 9:53 PM > > Hi, > > How do you know if you have had a brain bleed. I just started on Sprycel 2 > weeks ago... Penny > > On Tuesday, November 1, 2011 1:22:54 PM UTC-6, rszi...@aol.com wrote: > > This is great news about Tasigna....! I spoke yesterday to a doctor in > charge of a clinical trial. He advised me with my history of bleeding in the > brain to NEVER take sprycel, said it is well known that it causes bleeding. > All my other doctors have been wanting me to go on it! He advised tasigna > only, as it is the only one that does not have the slight side effect for > those who are prone to have bleeding. Very very important news for me, as > I've not been on anything for four and a half years. Gleevec caused > bleeding. I am going soon for another bcr/abl test, it's been a year. I am > so thankful I'm still in cellular remission. This doctor yesterday said > don't wait until you come out of remission because you could go into blast > phase. Pray that things come together for me financially to do this. By the > way, what side effects come with tasigna??? > > 18's, > > Susan F. Zimmerman > > > -----Original Message----- > From: Suzan Collins <skrac...@yahoo.com> > To: cmlhope <cml...@googlegroups.com> > Sent: Mon, Oct 31, 2011 9:39 pm > Subject: Re: [CMLHope] Tasigna > > Hi I don't post much. I was dxed in June 2004. I had never reached all zeros > before and it always stayed around .004. I had so much trouble with severe > side effects from gleevec and sprycel and sprycel also gave me skin ulcers. > So he put me on tasigna . I have been on tasigna for nearly 2 years and from > the beginning I continued to have trouble with bad side effects two months > later. So my doctor decided to put me on 200 mgs once every other day. The > side effects declined immensely and my last fish test was all zeros so even > though it is only 200 mgs every other day tasigna has kept my CML under > control. So good luck. I hope that you can get they same results that I have. > Suzan > > From: kellyelise <kelly...@aol.com> > To: CMLHope <cml...@googlegroups.com> > Sent: Monday, October 31, 2011 8:24 PM > Subject: [CMLHope] Tasigna > > Marty...tweet, tweet? Ha ha ha!! You are so funny!! > > Anyway....My PA from MDAnderson in compliance with Dr. Cortes have > allowed me to take Tasigna @ 200mg daily. It is less that the > recommended dose but they are hoping to lessen side effects but at the > same time put the CML back under control. I "think" she said my PCR > was 0.333% (does that make sense?). I have never come out of remission > in 4 years until now (boo!). She also said I am showing no evidence of > the Philadelphia chromosome. I have no idea what this all means since > I cannot retain anything, but, I am hoping it is good news. > > Any advice, knowledge, etc., would be greatly appreciated. I am > currently in the market for a heme/onc and will be looking 50 miles to > the West (Cleveland, OH) or 50 miles to the East (Erie, PA). I asked > my NP at CCF for some guidance and hopefully she can provide some. > > 18s to everyone! > Kelly > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------ ------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to cml...@googlegroups.com > To unsubscribe from this group, send email to CMLHope-u...@ googlegroups.com > For more options, visit this group at http://groups.google.com/ group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------ ------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to cml...@googlegroups.com > To unsubscribe from this group, send email to CMLHope-u...@ googlegroups.com > For more options, visit this group at http://groups.google.com/ group/CMLHope > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
