Thanks for sharing. I also use a simuluar version. I susually put it in when I post my results.
Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .7 1/08 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-Pressent QT-PCR .3 4/09 QT-PCR .15 6/09 QT-PCR .21 9/09 QT-PCR .28 1/10 QT-PCR .1+ 4/10 QT-PCR .468 10/10 QT-PCR .468 2/22/11 QT-PCR .323 8/23/011 QT-PCR .261 2/14/2012 QT-PCR .241 8/12/12 Next QT-PCR 4/13 On Wednesday, September 5, 2012 10:22:07 AM UTC-5, TEDBDD wrote: > Richard...nice work, I do the same thing with my blood work. I also > keep a shorthand version of my journey that I share with my Doc's which > they say helps...particularly if you change Doc's or have to be treated in > a new facility. I have shared it before...but here it is. I believe Zavie > Miller, one of the original CMLers who has recently passed away, set up the > format. It is always helpful to see how others have made it to the > present....so copy format and used it to share your journey as well if it > suits you. Here it is: > > Tom Dunham, BD: 8/1941 Updated:6-13--12 > DX CML 12-23-2008 > MDA Protocol: Tasigna-400mg; 2xday-1/09 > On Flecainide for AF...still had frequent episodes > Q PCR bone@ 0.17 on 7/09 > Acute Pancreatitis-7/5/09 > Stopped Tasigna-7/13/09 > Q PCRU blood-7-29-09 ! > Started Gleevec-400mg/day-7/31/09 > Developed rash ~ 8/19/09 > Rash treated with Steroids..improvement > Rash worsens~9/22/09 > Stopped Gleevec-9/28/09 > Restarted Gleevec @300mg/day-10/8/09 > Stopped Gleevec-10/13/09-toxic rash\ > AF returned infrequently > Q PCR bone-0.05 > Started Sprycel @ 100mg/day-10/20/09 > Some AF...increased FLecainde..1, 2x/day > Q PCR bone..0.07 > Stopped Alcohol…no AF, ½ Flecainide 2x/day > Q PCR Blood…Non Detectible-12-13-10 > Q PCR Bone..0.01--2-25-11 > Q PCR Blood…Undetectible-5-19-11 > Reduced Flecainide to 1/2 per day > Pleural and pericardial Effusion: stopped Sprycel-12-6-'11 > Prednisone 50mg /day to combat PE; 12/14/'11 gradual reduction > Pleural Effusion clear 12-21-11 > Started Sprycel 70mg/day..12-23-11 > QPR bone <0.01...2-16-12 > Started Sprycel 50mg/day..3-10-12 > Chest pains...slightly more PL Eff 4-19-12 > Steroid Dose pack to alleaviate..still on 50mgs > Change to 20 mgs/day Sprycel..4-26-12 > Chest clear, effusion gone-5-14-12 > Q-PCR Blood-Undetectible-6-13-12 > > Neuropathy moving up legs, weakness noted ~7-12 > > Q-PCR Blood MDA-<0.01…8-21-12 > > > In a message dated 9/5/2012 12:06:27 A.M. Eastern Daylight Time, > richard...@comcast.net <javascript:> writes: > > My ONC carefully went over my first CBC and instructed me on which > readings he considered the most important. When the PCR's started he did > the same thing. He told me to never leave his office without a copy for my > records. At about the 3 year anniversary he made a comment about having to > dig through my record to make the comparisons so the next time I took him a > copy of my excel worksheet from the begtinning and ask him if he wanted a > copy of my workbook so he could modify it for other patients but he > declined. He was properly shocked and pleased that I tried to keep an easy > review of my records. > > Richard H. > On Tuesday, September 4, 2012 4:19:29 PM UTC-5, Jeanie wrote: > >> Thanks Skip, My onc doesn't ever talk about my blood counts with me. I >> have to ask him for a printout. I just don't understand him at all. I do >> keep track of all that as they sure don't seem to. Hang in there. >> Jeanie<3 >> >> In a message dated 9/1/2012 9:20:20 A.M. Eastern Daylight Time, >> skipd...@yahoo.com writes: >> >> Great Article Lottie, >> and the things it tells you to avoid are exactly what has been told to >> me, at least once or twice >> a month. My blood reports tell me I have Leukopenia, Neutropenia, and >> Thrombocytopenia. >> If anyone has any of these in their report they should look out for your >> ANC (Absolute Neutrophil Fill count.) >> Talk to your doctor if your below 1000, which is low be extra carful if >> below 500, normal is around 2000 10 9/L (that should be an upper case >> little nine) >> skipd >> >> >> >> *:* [cml 2] Fw: Neutropenia - How To Avoid Infections >> >> >> >> >> Neutropenia: A Vulnerable Time for Infections >> What Is Neutropenia? >> >> There are many types of white blood cells, each with specific roles, but >> their main job is to fight infection. Neutropenia is a condition in which a >> person has very low amounts of a type of white blood cell called a >> neutrophil in their body. Since white blood cells attack harmful bacteria, >> viruses, and fungi, neutropenia increases the risk of infections. >> >> How to Protect Yourself if You Are Neutropenic >> Good personal hygiene and avoiding things that promote the growth of >> bacteria lower the risk of infection. The following suggestions are for >> people with neutropenia who are outside the hospital: >> >> a.. Avoid people with signs of infection and avoid large crowds. Wear a >> face mask if you cannot avoid crowds. >> >> b.. Avoid people who are sick with communicable (contagious) diseases, >> including a cold, the flu, measles, or chicken pox. >> >> c.. Stay away from children who have recently been given "live virus" >> vaccines such as chicken pox and oral polio, as they may be contagious to >> people with very low blood cell counts. >> >> d.. Bathe daily and wash your hands frequently, especially after using >> the bathroom, after touching animals, and before eating. >> >> e.. Use lotion or oil if your skin becomes dry. >> >> f.. Clean your rectal area gently but thoroughly after each bowel >> movement. Let your doctor know if the area becomes irritated or if you >> develop hemorrhoids. >> >> g.. Brush your teeth after meals with a soft toothbrush. Rinse your mouth >> twice daily with a solution made of water and either salt or baking soda. >> Temporarily avoid flossing, which can open new wounds and create an entry >> for bacteria. >> >> h.. Avoid accidents and injuries. Be careful not to cut yourself in any >> way, including the cuticles of your nails. Use an electric shaver instead >> of a razor to avoid cutting yourself while shaving. >> >> i.. Do not squeeze or scratch pimples. >> >> j.. Clean any cuts and scrapes with soapy warm water right away and apply >> an antiseptic. >> >> k.. Avoid gardening, cleaning bird cages, cleaning fish tanks, or >> changing cat litter, all of which can expose you to bacteria. >> >> >> http://inhealth.about.com/when-cancer-care-leads-to-neutropenia/neutropenia-a-vulnerable-time-for-infections?did=t5_rss39 >> >> l.. >> m.. FYI, >> n.. 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