Hi all. Had all the same side effects from gleevec. Stayed on it for 5 years. It quit working for me and was put on tasigna. That was an awful experience for me. Had to have blood transfusion and it quit working also. Finally was put on sprycel. It put me into PCRU. Leg pain is gone cramps are gone. However lots of people are doing good on tasigna and gleevec. If your symptoms are getting so bad. U might try something new. We just don't know how each person will do on each drug. Good luck to u Jeanie dx 2004 Gleevec Tasigna Sprycel Still kicking Sent from my iPhone
On Mar 10, 2013, at 5:22 PM, myvet...@aol.com wrote: > I have had almost all of your problems, plus a view extra. Very watery eyes > and blurred vision. Drink lots of water that will help somewhat. I get cramps > the same, fingers, hands, feet, legs, cramps in muscles I didn't know I had. > Throw a bar of dial soap between the sheets for the legs that will help. > Other problems are in most part the Gleevec. Some of them will go away in > time and just hang in their it gets better. > > greenie > > In a message dated 3/10/2013 10:37:10 A.M. Eastern Daylight Time, > mylis...@yahoo.ca writes: > I was diagnosed with CML in Oct 2012. It was funny, I thought what I was > feeling was stress related due to my job and/or perhaps early onset of the > change of life. Symptoms were extreme fatigue, waking up tired after a full > nights sleep, night sweats and fever, weight loss and discomfort when > sitting. Finally went to a doctor and asked them to check my hormone levels > and do a complete physical. Dr sent me for an ultra sound too because of a > hard lump in my side. Turns out my spleen was twice the size it should have > been and my blood test came back with really high white cells, low red cells > and high platelets. Dr referred me to an Oncologist who has put me on > Gleevec. Today, my white cells are within normal, my red cells are still a > little low and my platelets remain higher than they should be. Had to go on > a disability leave from work due to the pain from trying to sit - from the > enlarged spleen and joint pain. Have been off work since late Nov 2012. I > currently have been experiencing pain in my hip and knee joints, as well as > excruciating pain in my shin bones. Is this normal? Is it the Gleevec > causing it, or the leukemia? > > Also having really weird muscle cramps - charlie horses in my legs that hurt > bad enough to make me cry and cramping in my fingers and toes. Feels like my > hands and feet will never be warm again....am really looking forward to > summer. Anyone else experiencing this? > > The Oncologist says I might have to try a different drug which is scaring me, > as Gleevec has brought down my white counts...what if nothing else works? > Has anyone found anything that relieves the pain? I've tried A535 and hot > baths, heating pads etc Have been told I can't take aspirin, tylenol or > advil as they interact with Gleevec. GP recommended trying massage > therapy, but when certain spots on my knees and legs are touched I can't bear > it. Would be really interested to hear if anyone else has found something > that helps.... > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
