Hello all,
Thanks so much for the inspiration, Millie, Marty, Richard and Beth! You guys are fantastic and I am suddenly most aware of your help and encouragement. Marcie has also helped amazingly with that! During the six years while not on gleevec against my doc's orders, I skipped over most cml google group posts as I was not dwelling on the illness, and I usually get about 200 e-mails a day. So I am not up on the latest thing. Thanks Pat Elliott for helping with direction on docs in certain cities. You are always johnny-on-the-spot and fulfilling your role soooo very well! I wish you all the very best. Now my numbers from the bcr/abl test were 23.8.....horribly high, I know. However, after 15 days on lightest dose of tasigna, my right eye stopped moving with the left for a short time, giving me a warning signal about another stroke. Now I must find a specialist somewhere that will help me use some (maybe new?) medicine to bring those numbers down. Is anyone here on bosutinib or ponatinib??? Very interested to converse with you, if you are! Has anyone heard about the vaccination process that Moffitt in Tampa had told me years ago that was being worked on? They (Dr. Javier Pinilla) hoped six years ago that would lead to a cure. With all your encouragement and determination to enjoy every day, I am with ya! You all are absolutely fantastic as you each do your best to leave a positive word. I am hoping and praying I don't go into blast phase before something good happens. G_d is definitely in control, so no fear here! Praying for you all. 18's, Susan F. Zimmerman -----Original Message----- From: Marty Gartenberg <wa2...@gmail.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Fri, Jul 19, 2013 5:29 am Subject: Re: [CMLHope] Re: Hi Hi Millie, You want to know something? No matter what you are and have been going through your still here and kicking. You Millie are just like that pink ever-ready bunny. You just keep going and going. You ended your last statement with That's what we all do, so nothing new......!!!!! Well Millie, you your correct, that's what we all do, but there is something new. Another day! 18's Marty On Thu, Jul 18, 2013 at 11:11 PM, Richard H <richard1huff...@comcast.net> wrote: Sorry to hear about your new health challenge. I am adding you to my special list for prayers. I wll be praying for this to be a bump in the road and not a mountain to climb. Richard H. On Tuesday, July 16, 2013 9:59:14 AM UTC-5, millie wrote: Hello to everyone. I didn't get on here yesterday as I was sick to my stomach (from what I don't know), and still have it a little today, but not as bad. I did see my Oncologist and he was able to get the results of my biopsy. Well, it is cirrhosis of the liver and so we have to deal with it. Since I've been on Tasigna for 6 years he is confused as this would normally happen during the first year on the drug, so we have to find out how to deal with it. He's going to call the people that make the drug and see what they can find out. Meanwhile, I'm off of the Tasigna until further notice. He did blood work, so he'll call me with the results when he gets them. He is also going to put me on the list for a liver transplant. I didn't think they would consider that at my age, and with my other health issues, but he says that they will. He works for Geisinger Hospital, which is huge in this area and they do lots of advanced things, so we shall see. I went to their new cancer clinic in Pottsville, and it was nice and brand new, so it was a pleasant experience. Your prayers, etc. will be appreciated. I just have to deal with what is. That's what we all do, so nothing new......!!!!! Talk to you soon. Many hugs, Millie -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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