On Friday, December 13, 2013 9:23:40 PM UTC-8, Richard H wrote: > > Yes due to other problems as well as CML I still have mountains to climb. > Every day I wake up and see the sun shining over that mountain top I > rejoyce that I can climb another foothill. I continued working after I was > diagnosed and it was a struggle as many others do. > > Richard H. > > On Friday, December 13, 2013 1:14:59 AM UTC-6, Mar wrote: >> >> Thank you everyone for responding. Feels less like you are on an isolated >> island... there are no support groups in my area... so, I do appreciate >> your emails with encouragement and support. >> >> I was glad to hear there are other medications. I gather this is a long >> journey... to figure out which drug and at what level... not one that can >> be answered quickly. I find the side effects difficult to deal with as I >> continue to work. Not sure if it is possible to work while all of this is >> being figured out. Do most people continue working? >> >> Richard, diagnosed in 2003 and there are still mountains? I guess I am >> expecting to much to soon. >> >> Beth, My hematologist specialist didn't put me on the 100mg I was on at >> the beginning because of the first toxicity. I have been on 20 mg which >> doesn't seem to be much but, I can't believe my body doesn't even like the >> 20 mg... I just learned today I am back into the toxicity and cytopenias. >> I have side effects to Diasanatib I didn't have on the Gleevec as well. I >> found the 100 mg gave me insomnia, medically induced depression and rash... >> I only have the rash at 20mg. But, seem to have a lot of bone pain lately. >> >> I am giving you all a big hug and thank you for your emails as it is nice >> to know there are people who understand much more than I do (being such a >> newbie). I look forward to hearing from all and learning from you. I hope >> all of you are doing well in your own journey :) >> >> Ididn't know that 1and 8 meant life.. will post this in front of me for >> inspiration! >> >> Cheers, >> Mar >> >> On Thursday, December 12, 2013 8:25:25 PM UTC-8, Richard H wrote: >>> >>> Welcome to this group. Almost every one has had problems adjusting to >>> the meds. Try your best to remain positive as that seems to help most of >>> us. We are here to listen and in return we give back what we have learned >>> to get over this little hill at this moment. I was diagnosed in 2003 and >>> the mountain I have to climb is still on the horizon. >>> >>> Richard H. >>> >>> On Thursday, December 12, 2013 8:42:51 AM UTC-6, Mar wrote: >>>> >>>> Hi, I am new to the group. I was diagnosed January 10 2013. Since then >>>> I have been on Gleevec, failed (due to toxicity twice) and was switched to >>>> Dasatinib which I have toxicity to as well and had to stop taking the >>>> medication. Each time I have had the toxicity my blood levels are so low >>>> that it takes 4-5 weeks for them (neutrophils, platelets and wbc's) to go >>>> back to even the lower range of normal. Thus, I have not yet had any >>>> cytogenic or molecular recovery.. if anything, my last result was going >>>> backward. I have another appointment on December 19th to see if there is >>>> any recovery at all... I am keeping my fingers crossed. It has been quite >>>> the roller coaster... I am not sure if others have had the same type of >>>> roller coaster in the first year. >>>> >>>> I just ran into this group tonight and I appreciated reading others >>>> emails about their recovery... thank- you.. Hope to be able to post one of >>>> my own recovery stories one of these days. >>>> >>>> Mar >>>> >>>
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