They took me off hydrea Marty. I am now on new drug, ponatinib. It brought my WBC down but not the platelets. I think they will add a drug if they are not down Monday. You are so right--it's in God's hands now. I've trusted Him since I was a little girl and I sure won't stop now. Thanks for lifting us up
Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 6:13 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Hi Jeanie, > > That's right it is in the millions. Allopurinol is not what will bring this > down it is Hydrea that will do that. Don't worry this will all work out. I > remember whenever I took a blood test I used to sweat until I got the results > and when I finally got the results back I just had to deal with it so my > Hydrea was either reduced or I was told to take more. It is just a process > that you have to go through but like I said don't you worry anything about > it. Please remember what you take today will usually show up in a blood test > in about a week or so. > > GOD is looking down on you with a smile. Now how can you beat > that?<35D.gif>Hugs Jeanie. > > 18, > > Marty > >> On Fri, Jan 30, 2015 at 3:20 PM, 'Icandoallttc' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Oh sorry Marty >> They are listed as >> C1535 k/ul >> Since he told me they were in the millions I assume this is millions. >> I hope the new med starts bringing them down. >> He lowered my allopurinol to 100 mgs daily. >> How are you? >> >> >> Prayers & Blessings Jeanie 18's >> >>> On Jan 30, 2015, at 3:02 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>> >>> Hi Jeanie, >>> >>> Could you clarify something? Your platelets are ??? by chance did you leave >>> out the period? >>> >>> Your Creation is very good, I wish that mine were that low. Mine was at the >>> last count 9.8. That is why I am on dialysis. >>> >>> By the way, the rest of your counts are really not all that bad. >>> >>> 18's, >>> >>> Marty >>> >>>> On Fri, Jan 30, 2015 at 12:38 PM, 'Icandoallttc' via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> >>>> Hi all, >>>> The following counts were all high on latest blood test: >>>> >>>> RDW 62.5 >>>> Platelet counts 1535 >>>> Basophils Auto 0.30 k/ul >>>> Immature Gran Auto 0.34 k/ul >>>> Potassium 5.6 >>>> Bun 25 mg/dl >>>> Creatine 1.1 >>>> >>>> Prayers & Blessings Jeanie 18's >>>> >>>>> On Jan 30, 2015, at 8:00 AM, Icandoallttc <icandoall...@aol.com> wrote: >>>>> >>>>> Kk Greenie. >>>>> The doctor gave me Proclorperazine. It didn't help me that much but >>>>> meclizine did. We all have to find what works for us. Good luck and >>>>> hang in there. >>>>> >>>>> Prayers & Blessings Jeanie 18's >>>>> >>>>>> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope >>>>>> <cmlhope@googlegroups.com> wrote: >>>>>> >>>>>> Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take >>>>>> the hole pill in makes me sleepy. 1/2 works better but that puts me into >>>>>> low gear. But it does take away the nausea. >>>>>> >>>>>> greenie >>>>>> >>>>>> In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, >>>>>> cmlhope@googlegroups.com writes: >>>>>> Hi Greenie >>>>>> Sorry to hear you still have your nausea. >>>>>> Have you tried Meclizine ? I find it works better than compozine. My >>>>>> nausea is better since coming off hydrea. >>>>>> I am on my 5th day of ponatinib. I had blood work done yesterday. >>>>>> My WBC came down but the platelets keep going up. Still in the millions >>>>>> (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) >>>>>> tablets daily. >>>>>> My skin is drying out and headaches have returned. This reminds me of >>>>>> Gleevec but it has many side effects. >>>>>> Just have to deal with them as usual. >>>>>> I hope everyone is good this morning. >>>>>> >>>>>> >>>>>> Prayers & Blessings Jeanie 18's >>>>>> >>>>>>> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope >>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>> >>>>>>> I all the good news was short termed, I woke up yesterday and the >>>>>>> nausea came back so I'm thinking I may have picked up some bug. Grace >>>>>>> she's O.K. time will tell. So far this morning I feel find but will see >>>>>>> our the rest of the day goes. >>>>>>> >>>>>>> greenie >>>>>>> >>>>>>> In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, >>>>>>> cmlhope@googlegroups.com writes: >>>>>>> YEAH FOR GOOD NEWS!!!! :) Beth >>>>>>> >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>>> Sent: Tue, Jan 27, 2015 4:59 pm >>>>>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on >>>>>>> tkis? >>>>>>> >>>>>>> Well, I have good news. We both woke up today, Grace was O. K. and >>>>>>> later on into the day I'm feeling much better. Tomorrow well tell the >>>>>>> truth. I'll let you all know and Thanks for thinking of us both. We >>>>>>> all are one hell of a team, we should have our own Superbowl.. >>>>>>> >>>>>>> greenie >>>>>>> >>>>>>> In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, >>>>>>> cmlhope@googlegroups.com writes: >>>>>>> maybe you both have a bit of a virus or bug? Hope that's all it is and >>>>>>> you both will feel better soon. It does seem odd when all of a sudden >>>>>>> after so many years you get a symptom like nausea. >>>>>>> Be well...thinking of you and everyone else today... >>>>>>> >>>>>>> Beth >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>>> Sent: Mon, Jan 26, 2015 5:09 pm >>>>>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on >>>>>>> tkis? >>>>>>> >>>>>>> Hi Beth, I'm starting to think it's not the Gleevec that's given me the >>>>>>> nausea because my wife started to get the nausea also. Could be >>>>>>> Florida weather, tree's, flowers, etc. >>>>>>> >>>>>>> greenie >>>>>>> >>>>>>> In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, >>>>>>> cmlhope@googlegroups.com writes: >>>>>>> Greenie, Remember, if you do need to swap a TKI....Lots of good options >>>>>>> with low doses because you have done so well for so long on >>>>>>> Gleevec...you are a warrior. My blood counts are O.K...but I appreciate >>>>>>> the anxiety of all this for all of us..it's one of the harder parts to >>>>>>> manage well. Good luck to you! Beth >>>>>>> >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: Joan <lilak...@gmail.com> >>>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>>> Sent: Mon, Jan 26, 2015 5:01 pm >>>>>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on >>>>>>> tkis? >>>>>>> >>>>>>> Greenie, >>>>>>> I had to quit Gleevec because it was messing with my kidneys. Now I >>>>>>> take Tasinga. >>>>>>> Joan >>>>>>> >>>>>>>> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >>>>>>>> Hi to my friends in our group, well I've been on Gleevec for 15 years >>>>>>>> and 14 days all of a sudden for the last 4 days I'm having nausea >>>>>>>> problems. I'm taking some promethazine that helps some what but it's >>>>>>>> not a fun thing. I have no idea what started it either. I had this >>>>>>>> problem before when we lived in Springfield, MO. I got over heated and >>>>>>>> got hit with nausea every day for a little more then 2 years then I >>>>>>>> awoke one morning and it was like someone turned off the switch and it >>>>>>>> was gone. This time of the year it's not hot here so I know that's >>>>>>>> not what caused this problem. >>>>>>>> >>>>>>>> I'm going to take a Gleevec break for a week or two to clean out my >>>>>>>> system and hope that I get back to normal. I did this >>>>>>>> before about 6 years ago when I had a sinus infection and the doctor >>>>>>>> back in Indiana put me on and anabolic that interfered with my Gleevec >>>>>>>> so we stopped Gleevec for 26 days. After getting blood work some >>>>>>>> cancer cells did show back up in my blood work but after stating >>>>>>>> Gleevec again the next test showed that I was clean again. >>>>>>>> >>>>>>>> My doctor at that time was doctor Tallman and he gave me a call and >>>>>>>> said "well if it worked before it will work again" and that was that. >>>>>>>> So I have my fingers crossed to see what happens. I can't stand this >>>>>>>> nausea problem, my heart goes out to the women that have babies and >>>>>>>> have to put up with nausea. I just hope it's the Gleevec again and >>>>>>>> not something else. My blood counts are O. K. so I'm not worried >>>>>>>> about that. This does not help my anxiety problems >>>>>>>> >>>>>>>> Will keep you all up to date as how things go. >>>>>>>> >>>>>>>> greenie >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>> To unsubscribe from this group, send email to >>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>> -- 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