Kk Greenie. The doctor gave me Proclorperazine. It didn't help me that much but meclizine did. We all have to find what works for us. Good luck and hang in there.
Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope <cmlhope@googlegroups.com> > wrote: > > Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take the > hole pill in makes me sleepy. 1/2 works better but that puts me into low > gear. But it does take away the nausea. > > greenie > > In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > Hi Greenie > Sorry to hear you still have your nausea. > Have you tried Meclizine ? I find it works better than compozine. My > nausea is better since coming off hydrea. > I am on my 5th day of ponatinib. I had blood work done yesterday. > My WBC came down but the platelets keep going up. Still in the millions > (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets > daily. > My skin is drying out and headaches have returned. This reminds me of > Gleevec but it has many side effects. > Just have to deal with them as usual. > I hope everyone is good this morning. > > > Prayers & Blessings Jeanie 18's 🐠🐠 > >> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope <cmlhope@googlegroups.com> >> wrote: >> >> I all the good news was short termed, I woke up yesterday and the nausea >> came back so I'm thinking I may have picked up some bug. Grace she's O.K. >> time will tell. So far this morning I feel find but will see our the rest of >> the day goes. >> >> greenie >> >> In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> YEAH FOR GOOD NEWS!!!! :) Beth >> >> >> -----Original Message----- >> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Tue, Jan 27, 2015 4:59 pm >> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >> >> Well, I have good news. We both woke up today, Grace was O. K. and later on >> into the day I'm feeling much better. Tomorrow well tell the truth. I'll >> let you all know and Thanks for thinking of us both. We all are one hell of >> a team, we should have our own Superbowl.. >> >> greenie >> >> In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> maybe you both have a bit of a virus or bug? Hope that's all it is and you >> both will feel better soon. It does seem odd when all of a sudden after so >> many years you get a symptom like nausea. >> Be well...thinking of you and everyone else today... >> >> Beth >> >> -----Original Message----- >> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Mon, Jan 26, 2015 5:09 pm >> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >> >> Hi Beth, I'm starting to think it's not the Gleevec that's given me the >> nausea because my wife started to get the nausea also. Could be Florida >> weather, tree's, flowers, etc. >> >> greenie >> >> In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> Greenie, Remember, if you do need to swap a TKI....Lots of good options with >> low doses because you have done so well for so long on Gleevec...you are a >> warrior. My blood counts are O.K...but I appreciate the anxiety of all this >> for all of us..it's one of the harder parts to manage well. Good luck to >> you! Beth >> >> >> -----Original Message----- >> From: Joan <lilak...@gmail.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Mon, Jan 26, 2015 5:01 pm >> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >> >> Greenie, >> I had to quit Gleevec because it was messing with my kidneys. Now I take >> Tasinga. >> Joan >> >>> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >>> Hi to my friends in our group, well I've been on Gleevec for 15 years and >>> 14 days all of a sudden for the last 4 days I'm having nausea problems. >>> I'm taking some promethazine that helps some what but it's not a fun thing. >>> I have no idea what started it either. I had this problem before when we >>> lived in Springfield, MO. I got over heated and got hit with nausea every >>> day for a little more then 2 years then I awoke one morning and it was like >>> someone turned off the switch and it was gone. This time of the year it's >>> not hot here so I know that's not what caused this problem. >>> >>> I'm going to take a Gleevec break for a week or two to clean out my system >>> and hope that I get back to normal. I did this before about 6 years ago >>> when I had a sinus infection and the doctor back in Indiana put me on and >>> anabolic that interfered with my Gleevec so we stopped Gleevec >>> for 26 days. After getting blood work some cancer cells did show back up >>> in my blood work but after stating Gleevec again the next test showed that >>> I was clean again. >>> >>> My doctor at that time was doctor Tallman and he gave me a call and said >>> "well if it worked before it will work again" and that was that. So I have >>> my fingers crossed to see what happens. I can't stand this nausea problem, >>> my heart goes out to the women that have babies and have to put up with >>> nausea. I just hope it's the Gleevec again and not something else. My >>> blood counts are O. K. so I'm not worried about that. This does not help >>> my anxiety problems >>> >>> Will keep you all up to date as how things go. >>> >>> greenie >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You 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