That is what Hydrea does it drops your counts but I am surprised that it didn't drop your platelets. Remember what I said about how Hydrea works. What you take today will start to work in about a week or so. Why don't you wait and see if it drops your platelets.
18's, Marty On Sat, Jan 31, 2015 at 3:30 PM, 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> wrote: > They took me off hydrea Marty. I am now on new drug, ponatinib. It > brought my WBC down but not the platelets. > I think they will add a drug if they are not down Monday. > You are so right--it's in God's hands now. I've trusted Him since I was a > little girl and I sure won't stop now. > Thanks for lifting us up > > > > Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] > > On Jan 30, 2015, at 6:13 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Hi Jeanie, > > That's right it is in the millions. Allopurinol is not what will bring > this down it is Hydrea that will do that. Don't worry this will all work > out. I remember whenever I took a blood test I used to sweat until I got > the results and when I finally got the results back I just had to deal with > it so my Hydrea was either reduced or I was told to take more. It is just a > process that you have to go through but like I said don't you worry > anything about it. Please remember what you take today will usually show up > in a blood test in about a week or so. > > GOD is looking down on you with a smile. Now how can you beat > that?<35D.gif>Hugs Jeanie. > > 18, > > Marty > > On Fri, Jan 30, 2015 at 3:20 PM, 'Icandoallttc' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> Oh sorry Marty >> They are listed as >> C1535 k/ul >> Since he told me they were in the millions I assume this is millions. >> I hope the new med starts bringing them down. >> He lowered my allopurinol to 100 mgs daily. >> How are you? >> >> >> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] >> >> On Jan 30, 2015, at 3:02 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >> >> Hi Jeanie, >> >> Could you clarify something? Your platelets are ??? by chance did you >> leave out the period? >> >> Your Creation is very good, I wish that mine were that low. Mine was at >> the last count 9.8. That is why I am on dialysis. >> >> By the way, the rest of your counts are really not all that bad. >> >> 18's, >> >> Marty >> >> On Fri, Jan 30, 2015 at 12:38 PM, 'Icandoallttc' via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >>> >>> Hi all, >>> The following counts were all high on latest blood test: >>> >>> RDW 62.5 >>> Platelet counts 1535 >>> Basophils Auto 0.30 k/ul >>> Immature Gran Auto 0.34 k/ul >>> Potassium 5.6 >>> Bun 25 mg/dl >>> Creatine 1.1 >>> >>> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] >>> >>> On Jan 30, 2015, at 8:00 AM, Icandoallttc <icandoall...@aol.com> wrote: >>> >>> Kk Greenie. >>> The doctor gave me Proclorperazine. It didn't help me that much but >>> meclizine did. We all have to find what works for us. Good luck and hang >>> in there. >>> >>> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] >>> >>> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope < >>> cmlhope@googlegroups.com> wrote: >>> >>> Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I >>> take the hole pill in makes me sleepy. 1/2 works better but that puts me >>> into low gear. But it does take away the nausea. >>> >>> greenie >>> >>> In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> >>> Hi Greenie >>> Sorry to hear you still have your nausea. >>> Have you tried Meclizine ? I find it works better than compozine. My >>> nausea is better since coming off hydrea. >>> I am on my 5th day of ponatinib. I had blood work done yesterday. >>> My WBC came down but the platelets keep going up. Still in the millions >>> (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets >>> daily. >>> My skin is drying out and headaches have returned. This reminds me of >>> Gleevec but it has many side effects. >>> Just have to deal with them as usual. >>> I hope everyone is good this morning. >>> >>> >>> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠] >>> >>> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope < >>> cmlhope@googlegroups.com> wrote: >>> >>> I all the good news was short termed, I woke up yesterday and the >>> nausea came back so I'm thinking I may have picked up some bug. Grace >>> she's O.K. time will tell. So far this morning I feel find but will see our >>> the rest of the day goes. >>> >>> greenie >>> >>> In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> >>> YEAH FOR GOOD NEWS!!!! :) Beth >>> >>> >>> -----Original Message----- >>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>> To: cmlhope <cmlhope@googlegroups.com> >>> Sent: Tue, Jan 27, 2015 4:59 pm >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on >>> tkis? >>> >>> Well, I have good news. We both woke up today, Grace was O. K. and >>> later on into the day I'm feeling much better. Tomorrow well tell the >>> truth. I'll let you all know and Thanks for thinking of us both. We all >>> are one hell of a team, we should have our own Superbowl.. >>> >>> greenie >>> >>> In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> >>> maybe you both have a bit of a virus or bug? Hope that's all it is and >>> you both will feel better soon. It does seem odd when all of a sudden after >>> so many years you get a symptom like nausea. >>> Be well...thinking of you and everyone else today... >>> >>> Beth >>> >>> -----Original Message----- >>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>> To: cmlhope <cmlhope@googlegroups.com> >>> Sent: Mon, Jan 26, 2015 5:09 pm >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on >>> tkis? >>> >>> Hi Beth, I'm starting to think it's not the Gleevec that's given me >>> the nausea because my wife started to get the nausea also. Could be >>> Florida weather, tree's, flowers, etc. >>> >>> greenie >>> >>> In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> >>> Greenie, Remember, if you do need to swap a TKI....Lots of good options >>> with low doses because you have done so well for so long on Gleevec...you >>> are a warrior. My blood counts are O.K...but I appreciate the anxiety of >>> all this for all of us..it's one of the harder parts to manage well. Good >>> luck to you! Beth >>> >>> >>> -----Original Message----- >>> From: Joan <lilak...@gmail.com> >>> To: cmlhope <cmlhope@googlegroups.com> >>> Sent: Mon, Jan 26, 2015 5:01 pm >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on >>> tkis? >>> >>> Greenie, >>> I had to quit Gleevec because it was messing with my kidneys. Now I take >>> Tasinga. >>> Joan >>> >>> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >>>> >>>> Hi to my friends in our group, well I've been on Gleevec for 15 years >>>> and 14 days all of a sudden for the last 4 days I'm having nausea >>>> problems. I'm taking some promethazine that helps some what but it's not a >>>> fun thing. I have no idea what started it either. I had this problem >>>> before when we lived in Springfield, MO. I got over heated and got hit with >>>> nausea every day for a little more then 2 years then I awoke one morning >>>> and it was like someone turned off the switch and it was gone. This time >>>> of the year it's not hot here so I know that's not what caused this >>>> problem. >>>> >>>> I'm going to take a Gleevec break for a week or two to clean out my >>>> system and hope that I get back to normal. I did this before about 6 years >>>> ago when I had a sinus infection and the doctor back in Indiana put me on >>>> and anabolic that interfered with my Gleevec so we stopped Gleevec for 26 >>>> days. After getting blood work some cancer cells did show back up in my >>>> blood work but after stating Gleevec again the next test showed that I was >>>> clean again. >>>> >>>> My doctor at that time was doctor Tallman and he gave me a call and >>>> said "well if it worked before it will work again" and that was that. So I >>>> have my fingers crossed to see what happens. I can't stand this nausea >>>> problem, my heart goes out to the women that have babies and have to put up >>>> with nausea. I just hope it's the Gleevec again and not something else. >>>> My blood counts are O. K. so I'm not worried about that. This does not >>>> help my anxiety problems >>>> >>>> Will keep you all up to date as how things go. >>>> >>>> greenie >>>> >>>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> 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