That is what Hydrea does it drops your counts but I am surprised that it
didn't drop your platelets. Remember what I said about how Hydrea works.
What you take today will start to work in about a week or so. Why don't you
wait and see if it drops your platelets.

18's,

Marty

On Sat, Jan 31, 2015 at 3:30 PM, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> They took me off hydrea Marty.   I  am now on new drug, ponatinib.    It
> brought my WBC down but not the platelets.
> I think they will add a drug if they are not down Monday.
> You are so right--it's in God's hands now. I've trusted Him since I was a
> little girl and I sure won't stop now.
> Thanks for lifting us up
>
>
>
> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠]
>
> On Jan 30, 2015, at 6:13 PM, Marty Gartenberg <wa2...@gmail.com> wrote:
>
> Hi Jeanie,
>
> That's right it is in the millions. Allopurinol is not what will bring
> this down it is Hydrea that will do that. Don't worry this will all work
> out. I remember whenever I took a blood test I used to sweat until I got
> the results and when I finally got the results back I just had to deal with
> it so my Hydrea was either reduced or I was told to take more. It is just a
> process that you have to go through but like I said don't you worry
> anything about it. Please remember what you take today will usually show up
> in a blood test in about a week or so.
>
> GOD is looking down on you with a smile. Now how can you beat
> that?<35D.gif>Hugs Jeanie.
>
> 18,
>
> Marty
>
> On Fri, Jan 30, 2015 at 3:20 PM, 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Oh sorry Marty
>> They are listed as
>> C1535 k/ul
>> Since he told me they were in the millions I assume this is millions.
>> I hope the new med starts bringing them down.
>> He lowered my allopurinol  to 100 mgs daily.
>> How are you?
>>
>>
>> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠]
>>
>> On Jan 30, 2015, at 3:02 PM, Marty Gartenberg <wa2...@gmail.com> wrote:
>>
>> Hi Jeanie,
>>
>> Could you clarify something? Your platelets are ??? by chance did you
>> leave out the period?
>>
>> Your Creation is very good, I wish that mine were that low. Mine was at
>> the last count 9.8. That is why I am on dialysis.
>>
>> By the way, the rest of your counts are really not all that bad.
>>
>> 18's,
>>
>> Marty
>>
>> On Fri, Jan 30, 2015 at 12:38 PM, 'Icandoallttc' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>>
>>> Hi all,
>>> The following counts were all high on latest blood test:
>>>
>>> RDW 62.5
>>> Platelet counts 1535
>>> Basophils Auto 0.30 k/ul
>>> Immature Gran Auto 0.34 k/ul
>>> Potassium 5.6
>>> Bun 25 mg/dl
>>> Creatine 1.1
>>>
>>> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠]
>>>
>>> On Jan 30, 2015, at 8:00 AM, Icandoallttc <icandoall...@aol.com> wrote:
>>>
>>> Kk Greenie.
>>> The doctor gave me Proclorperazine.   It didn't help me that much but
>>> meclizine did.   We all have to find what works for us.  Good luck and hang
>>> in there.
>>>
>>> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠]
>>>
>>> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope <
>>> cmlhope@googlegroups.com> wrote:
>>>
>>>  Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I
>>> take the hole pill in makes me sleepy. 1/2 works better but that puts me
>>> into low gear.  But it does take away the nausea.
>>>
>>> greenie
>>>
>>>  In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time,
>>> cmlhope@googlegroups.com writes:
>>>
>>> Hi Greenie
>>> Sorry to hear you still have your nausea.
>>> Have you tried Meclizine ?   I find it works better than compozine.  My
>>> nausea is better since coming off hydrea.
>>> I am on my 5th day of ponatinib.    I had blood work done yesterday.
>>> My WBC came down but the platelets keep going up. Still in the millions
>>> (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets
>>> daily.
>>> My skin is drying out and headaches have returned.  This reminds me of
>>> Gleevec but it has many side effects.
>>> Just have to deal with them as usual.
>>> I hope everyone is good this morning.
>>>
>>>
>>> Prayers & Blessings Jeanie 18's [image: 🐠][image: 🐠]
>>>
>>> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope <
>>> cmlhope@googlegroups.com> wrote:
>>>
>>>   I all the good news was short termed, I woke up yesterday and the
>>> nausea came back so I'm thinking I may have picked up some bug.  Grace
>>> she's O.K. time will tell. So far this morning I feel find but will see our
>>> the rest of the day goes.
>>>
>>> greenie
>>>
>>>  In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time,
>>> cmlhope@googlegroups.com writes:
>>>
>>> YEAH FOR GOOD NEWS!!!! :) Beth
>>>
>>>
>>> -----Original Message-----
>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
>>> To: cmlhope <cmlhope@googlegroups.com>
>>> Sent: Tue, Jan 27, 2015 4:59 pm
>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on
>>> tkis?
>>>
>>>  Well, I have good news.  We both woke up today, Grace was O. K. and
>>> later on into the day I'm feeling much better.  Tomorrow well tell the
>>> truth.  I'll let you all know and Thanks for thinking of us both.  We all
>>> are one hell of a team, we should have our own Superbowl..
>>>
>>> greenie
>>>
>>>  In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time,
>>> cmlhope@googlegroups.com writes:
>>>
>>> maybe you both have a bit of a virus or bug? Hope that's all it is and
>>> you both will feel better soon. It does seem odd when all of a sudden after
>>> so many years you get a symptom like nausea.
>>> Be well...thinking of you and everyone else today...
>>>
>>> Beth
>>>
>>> -----Original Message-----
>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
>>> To: cmlhope <cmlhope@googlegroups.com>
>>> Sent: Mon, Jan 26, 2015 5:09 pm
>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on
>>> tkis?
>>>
>>>  Hi Beth, I'm starting to think it's not the Gleevec that's given me
>>> the nausea because my wife started to get the nausea also.  Could be
>>> Florida weather, tree's, flowers, etc.
>>>
>>> greenie
>>>
>>>  In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time,
>>> cmlhope@googlegroups.com writes:
>>>
>>> Greenie, Remember, if you do need to swap a TKI....Lots of good options
>>> with low doses because you have done so well for so long on Gleevec...you
>>> are a warrior. My blood counts are O.K...but I appreciate the anxiety of
>>> all this for all of us..it's one of the harder parts to manage well. Good
>>> luck to you! Beth
>>>
>>>
>>> -----Original Message-----
>>> From: Joan <lilak...@gmail.com>
>>> To: cmlhope <cmlhope@googlegroups.com>
>>> Sent: Mon, Jan 26, 2015 5:01 pm
>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on
>>> tkis?
>>>
>>>  Greenie,
>>> I had to quit Gleevec because it was messing with my kidneys. Now I take
>>> Tasinga.
>>> Joan
>>>
>>> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote:
>>>>
>>>> Hi to my friends in our group,  well I've been on Gleevec for 15 years
>>>> and 14 days all of a sudden for the last 4 days I'm having nausea
>>>> problems.  I'm taking some promethazine that helps some what but it's not a
>>>> fun thing.  I have no idea what started it either.  I had this problem
>>>> before when we lived in Springfield, MO. I got over heated and got hit with
>>>> nausea every day for a little more then 2 years then I awoke one morning
>>>> and it was like someone turned off the switch and it was gone.  This time
>>>> of the year it's not hot here so I know that's not what caused this 
>>>> problem.
>>>>
>>>> I'm going to take a Gleevec break for a week or two to clean out my
>>>> system and hope that I get back to normal.  I did this before about 6 years
>>>> ago when I had a sinus infection and the doctor back in Indiana put me on
>>>> and anabolic that interfered with my Gleevec so we stopped Gleevec for 26
>>>> days.  After getting blood work some cancer cells did show back up in my
>>>> blood work but after stating Gleevec again the next test showed that I was
>>>> clean again.
>>>>
>>>> My doctor at that time was doctor Tallman and he gave me a call and
>>>> said "well if it worked before it will work again" and that was that.  So I
>>>> have my fingers crossed to see what happens.  I can't stand this nausea
>>>> problem, my heart goes out to the women that have babies and have to put up
>>>> with nausea.  I just hope it's the Gleevec again and not something else.
>>>> My blood counts are O. K. so I'm not worried about that.  This does not
>>>> help my anxiety problems
>>>>
>>>> Will keep you all up to date as how things go.
>>>>
>>>> greenie
>>>>
>>>>
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