Great news Greenie!!! Beth
-----Original Message-----
From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Sat, Feb 7, 2015 2:02 pm
Subject: Re: [CMLHope] Ponatinib
Great news Greenie.
You are doing fantastic!!!
Prayers & Blessings Jeanie 18's
On Feb 6, 2015, at 9:13 PM, Myvety2k via CMLHope <cmlhope@googlegroups.com>
wrote:
Hi Jeanie, I received my results this afternoon and everything is O.K. So that
proves that worrying over something that you have no control over does not
help. Hang in their we all are thinking about you.
greenie
In a message dated 2/6/2015 4:42:41 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Thanks Greenie
I think the new meds will work.
It's just going to take time--patience and hope must kick in.
Going next thurs for blood work and pet scan. Did you get your results?
Prayers & Blessings Jeanie 18's
On Feb 6, 2015, at 10:58 AM, Myvety2k via CMLHope <cmlhope@googlegroups.com>
wrote:
Jeanie, I'm sure had to here that good news. Give some time I'm sure they
get lower.
greenie
In a message dated 2/6/2015 10:04:03 A.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Good morning everyone
My blood results are in and my platelets came down a little--1050
million--WBC still at 14--still fighting.
Prayers & Blessings Jeanie 18's
On Feb 4, 2015, at 4:35 PM, bkbarney via CMLHope <cmlhope@googlegroups.com>
wrote:
Good you have a few options to work with...Hopefully this one will work
for you in a bit of time. I am championing your warrior spirit!!
Take care,
18's Beth
-----Original Message-----
From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Feb 4, 2015 7:07 am
Subject: Re: [CMLHope] Ponatinib
11 years for me--still fighting !!! 9th day on ponatinib. Sure hope
it starts working. My onc says it's my last choice but there is one
more tki I haven't tried--bositinib--not sure if spelling.
Thanks for the uplift.
Prayers & Blessings Jeanie 18's
On Feb 4, 2015, at 12:56 AM, bkbarney via CMLHope <cmlhope@googlegroups.com>
wrote:
Thanks Greenie. You too are my inspiration.Fifteen years!!! God
bless Dr. Druker! Five years for me February 12th. I was diagnosed at
48.
Take good care and enjoy the warmth! Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Feb 3, 2015 8:31 pm
Subject: Re: [CMLHope] Ponatinib
Beth, get out the heating pad make sure it's a big one they make
different sizes. I go fishing under the bridge going over to Sanibel
sometimes. If you do come down here we will get together that's for
sure. Just get better. My son Derek's wife Ruby, she has a massage
and yoga wellness studio 118 North Clinton St., Suite 102 in Chicago.
It's called Massage Evolved. website (massageevolved.com). They
started a little over a year ago and seem to be doing very good. He
called me over the weekend and told me about the snow. You miss
Florida and I'm sorry I don't miss North West Indiana because of that
weather. Summer is just to short up their, Grace and my bones
can't take it. Plus getting sick with a cold. But Grace want's
so purchase a small house or condo up their for the summer so we
would miss the real hot months down here. It would only be for 4 to
5 months. That way we could visit with our grand kids and our kids.
I can remember when I first found out that I had CML, it was to weeks
before xmas 1998. I asked the doctor at that time how much time I
had and she said between 1 1/2 to 2 years. She put me on hydra then
she sent me to Northwestern to see doctor Tallman and he put me in a
study with interferon which almost killed me it was that bad. They
stopped it after 3 months because I told him I couldn't take be that
sick anymore. So they stopped the study early..I wanted to die, a
short time he called me to put me in another study called STI571.
Their was only 8 of us and I was the only one from Indiana plus the
oldest of the 7. The study had 200 people from the US and this was
the only country using STI571. And here I am after 15 years still
driving everyone crazy. It's funny how things turn out, I call it
faith.
You just got to hang in their things will get better it won't happen
over night.
greenie
In a message dated 2/3/2015 6:03:14 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Greenie,
It's snowing again here in Chicago land..hopefully only a couple of
inches..to add to the 20 plus already on the ground. I have been
down with a bad cold this week...but I watched my neighbors son---
23 year old..trying to dig out people- including me! .snow drifts
were waist high! It's crazy...and now..it also got very
cold...below zero wind chills last night..so lots of ice...ah
winter....
I was dreaming last night about the causeway between Fort Myers and
Sanibel...watching the Osprey soar, seeing dolphin in the
water...the pelicans sitting on wood stumps along the water...snowy
egrets..and then I woke up!!! Must get back there soon one
day...maybe at the end of this year...hope to meet you when I do.
Will look to hear from you about your test results tomorrow.
Take care, Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Feb 3, 2015 5:57 am
Subject: Re: [CMLHope] Ponatinib
Hi Beth, I received a call from my son Derek about the snow he
lives in North Chicago. I hope I never have to move back north,
can't handle the cold and snow.
greenie
In a message dated 2/2/2015 10:42:17 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Dear Skip and Jeanie, Thinking of you both as you navigate new
terrains. Hope the ponatinib works soon Jeanie and sorry you are
struggling Skip. Do let us know if you what you decide regarding
ponatinib. I think about it also. ...
Greenie, hope you and your wife are feeling much better.
Snow here in Chicago. 21 inches, drifts up to my waist when I
opened my front door this morning. Now work today..have a cold so
it was a good day to bunker down here.
Blessings and love to all. Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, Feb 2, 2015 3:45 pm
Subject: Re: [CMLHope] Ponatinib
Jeanie, it's a good thing we don't get snow or ice here in
Florida because the way these people drive here the insurances
companies would go out of business in one day. They can't drive
here when the roads are dry.
greenie
In a message dated 2/2/2015 4:11:00 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Thanks Skip-I've never had blood counts that low--always
battling high ones.
Wow! That storm sounds neat!
We never get sleet and snow in Florida. I saw a sleet and
snow storm in my visit to Switzerland. My kids loved it and
were playing in it. I wasn't that brave--I went inside hehe.
I hope you get your platelets soon.
Prayers & Blessings Jeanie 18's
On Feb 2, 2015, at 2:30 PM, "'Skip Duffie' via CMLHope"
<cmlhope@googlegroups.com> wrote:
I am so sorry you counts vary so much mine have been doing
that now for a few years, Fri my HGB was 79.. my wbc was 1.5,
.. plts was 17 .. neut 0.3... ANC 0.279 normally I would
get somePLTS tomorrow but we have another big storm going to
hit tonight and will have freezing rain in morning and
all the snow will turn to ice.. so we will hold off until
Wed. I am sorry for not posting much but I find using the
computer very makes me very tired lately. still thinking
about Ponatinib, this is my fourth year without anything
except blood and platelet infusions
Skip Duffie
My brother lives in Naples, I live in South Fort Myers min.
from the beach. The weather will be Mon. 78, Tues 72, Wed
73, Thur 72, Fri 69 and Sat 68. Below normal should be in the
low 80's BUT better then SNOW>
Greenie
In a message dated 1/31/2015 11:39:12 P.M. Eastern Standard
Time, jl...@rogers.com writes:
Hi I am OK I had my counts done last Wednesday and my
platelets were 35 and white blood cells 2.8 and neutrofils
were 1.5. Hemoglobin 135. I am still off the drug and have
another check this coming Wednesday. I will go back on the
drug then and probably at 2 or three a week. My wife and I
will be coming to Naples Florida to visit friends for a
week or so. I hope it will be warm. Have your counts come
down ?
Sent from my iPad
> On Jan 31, 2015, at 3:04 PM, 'Icandoallttc' via CMLHope
> <cmlhope@googlegroups.com> wrote:
>
> Hi John
> I go to Moffitt cancer center. How are you?
>
> Prayers & Blessings Jeanie 18's
>
>> On Jan 31, 2015, at 10:47 AM, John Barrons
>> <jl...@rogers.com> wrote:
>>
>> Hi Jeanie: Where are getting treated? John
>>
>> Sent from my iPad
>>
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