Thanks Beth and yes just trying to adjust. The med is easy to take; just one small pill daily. Going for eye checkup soon. The problem is other doctors don't realize what these meds are all about. My onc told me to explain the med to the doctor but their specialty is eyes and that is what they are all about. We will see how it goes. Hope you are great! Blessings Jeanie<3 In a message dated 2/26/2015 4:19:40 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes:
Jeanie, That's great news that the blood work shows everything is good. Hard news that your side effects are so hard. vision problems and headaches....so sorry you are struggling, and the skin issues... still glad you are not having any joint cramps..that's a plus...this is only the beginning...perhaps as you adjust to the medicine, and they monitor you, over time, you can feel better....still, I am so glad it's working for you!!! Yippee! Thinking of Marty too...such brave warriors..... take care, Beth. -----Original Message----- From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Thu, Feb 26, 2015 3:04 pm Subject: Re: [CMLHope] Doctor's Visit Hi all Got my blood results and check up today. Everything is good. Got some bad side effects from ponatinib. Vision problems and headaches the worst. Rough dry skin on thighs and some skin peeling. Just finished my 30 day supply of meds. No joint pain or cramps. Praying for Marty--hope we hear soon. Prayers & Blessings Jeanie \uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD 83D\uDC20\uD83D\uDC20. 18,s On Feb 26, 2015, at 3:12 PM, "'Susan Zimmerman' via CMLHope" < _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: So happy for you, Richard!!! Fuzzy vision is weird, never had that myself.....but those leg and foot cramps, yeah! Now with my bosulif and only on 100 mg, virtually no side effects. Your turn will come, I'm sure of it. Either they'll find a real cure or you'll get to bosulif eventually. Even going to 200 mg of gleevec would be great!!! I wish you the best for sure!!!! 18's, Susan Z -----Original Message----- From: Richard H < _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) > To: cmlhope < _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Tue, Feb 24, 2015 12:17 pm Subject: [CMLHope] Doctor's Visit I received my test results yesterday. It shows a major molecular reduction down to 1.579% on the international scale. The side effects (a long list) are minimal. The most aggravating are watery, fuzzy vision and leg, foot cramps from twinges to a pain level 3. I started on 400mg Gleevec and in 20 days I had gained 10 lbs. I stopped Gleevec for 7 days. I restarted 300mg Gleevec and it has been great so far. I have changed when I take Gleevec from evening to midday, as it was causing indigestion at bedtime. I have been able maintain my weight and have not shown any weight increase on 300mg Gleevec. Richard H. Dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-12/11/14 QT-PCR .003 4/09 QT-PCR .0015 6/09 QT-PCR .0021 9/09 QT-PCR .0028 1/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 % 2/12 QT-PCR 2.410% 8/12 RT-PCR 9.183% 4/13 RT-PCR 4.57% 6/13 RT-PCR 10.183% 10/13 RT-PCR 10.577% 2/14 RT-PCR 16.050% 5/14 RT-PCR Approx. 20% 10/14 Restarted 400mg Gleevec 12/11/14 Stopped 400mg Gleevec 12/20/14 Edema in legs 10 lbs. in 10 days Started 300 mg Gleevec 1/27/14 QT-PCR 1.579% 2/15 -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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