Jeanie, That's great news that the blood work shows everything is good. Hard
news that your side effects are so hard. vision problems and headaches....so
sorry you are struggling, and the skin issues... still glad you are not having
any joint cramps..that's a plus...this is only the beginning...perhaps as you
adjust to the medicine, and they monitor you, over time, you can feel
better....still, I am so glad it's working for you!!! Yippee!
Thinking of Marty too...such brave warriors.....
take care,
Beth.
-----Original Message-----
From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Thu, Feb 26, 2015 3:04 pm
Subject: Re: [CMLHope] Doctor's Visit
Hi all
Got my blood results and check up today. Everything is good. Got some bad
side effects from ponatinib. Vision problems and headaches the worst. Rough
dry skin on thighs and some skin peeling. Just finished my 30 day supply of
meds. No joint pain or cramps. Praying for Marty--hope we hear soon.
Prayers & Blessings Jeanie
\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20\uD83D\uDC20.
18,s
On Feb 26, 2015, at 3:12 PM, "'Susan Zimmerman' via CMLHope" <
cmlhope@googlegroups.com> wrote:
So happy for you, Richard!!! Fuzzy vision is weird, never had that
myself.....but those leg and foot cramps, yeah! Now with my bosulif and only
on 100 mg, virtually no side effects. Your turn will come, I'm sure of it.
Either they'll find a real cure or you'll get to bosulif eventually. Even
going to 200 mg of gleevec would be great!!! I wish you the best for sure!!!!
18's,
Susan Z
-----Original Message-----
From: Richard H < rbhuffm...@gmail.com>
To: cmlhope < cmlhope@googlegroups.com>
Sent: Tue, Feb 24, 2015 12:17 pm
Subject: [CMLHope] Doctor's Visit
I received my test results yesterday. It shows a major molecular reduction
down to 1.579% on the international scale. The side effects (a long list) are
minimal. The most aggravating are watery, fuzzy vision and leg, foot cramps
from twinges to a pain level 3. I started on 400mg Gleevec and in 20 days I
had gained 10 lbs. I stopped Gleevec for 7 days. I restarted 300mg Gleevec
and it has been great so far. I have changed when I take Gleevec from evening
to midday, as it was causing indigestion at bedtime. I have been able maintain
my weight and have not shown any weight increase on 300mg Gleevec.
Richard H.
Dxd 2/2003
400mg Gleevec 3/2003
Undetectable 11/03
RT-PCR negative 11/04
QT-PCR .003 11/05
RBC 8.
Gleevec Vacation 11/06-6/07
Iron infusion 11/06
Transfusions 12/06-5/07
QT-PCR .007
Gleevec 1/08 -5/08
Procrit 8/08-11/08
Gleevec Vacation 7/08-12/11/14
QT-PCR .003 4/09
QT-PCR .0015 6/09
QT-PCR .0021 9/09
QT-PCR .0028 1/10
QT-PCR .001 4/10
QT-PCR .00468 10/10
QT-PCR 1.049% 2/11
QT-PCR .0612% 8/11
QT-PCR 2.616 % 2/12
QT-PCR 2.410% 8/12
RT-PCR 9.183% 4/13
RT-PCR 4.57% 6/13
RT-PCR 10.183% 10/13
RT-PCR 10.577% 2/14
RT-PCR 16.050% 5/14
RT-PCR Approx. 20% 10/14
Restarted 400mg Gleevec 12/11/14
Stopped 400mg Gleevec 12/20/14 Edema in legs 10 lbs. in 10 days
Started 300 mg Gleevec 1/27/14
QT-PCR 1.579% 2/15
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