Richard: Awesome news! Please make sure that you're monitored every three months. I've been on 250 mg since 2008...monitored PCR and PK testing every three months by Dr. Druker. I'm visiting with him in July. I think he will further reduce me to 200mg since I'm still have eye bleeds, eye swelling, cramping has been okay but not great, some edema in my ankles, among the many side effects. But, hey, I'm alive and have 4 grandchildren now!!!
Marty, I'm so glad you are aiming to continue to have better health everyday! Sherri, that's VERY exciting news about your PCR. Dancing in the rain is a great spirit...means nothing is going to phase you when you're "flying high"! I just got a reminder today that Zavie's birthday is on June 4th. A flood of great memories and sad ones flew in my face. I miss him terribly. Zavie ALWAYS gave us hope when we thought here was not any hope. In 2003, I emailed him once I began Gleevec. I explained that I had a low grade temperature. He said that I was not supposed to have a temperature. But I did and it was 100.5 annoyingly. I guess I should have known from that day forward my journey would be much different than anyone else's but we did not know this until 6 months later. Zavie learned many new things from me and I learned a lot from Zavie. It's an amazing journey because Dr. Druker also learned a lot of things about me and my Gleevec journey. I am still on Gleevec and still very much alive and just take each day as a new day learning to solve "problems" as they appear, when they appear and if they appear. The irony is that there are new TKIs out there and doctors nowadays will switch a patient immediately. It is Dr, Druker's and my thoughts that if the switches happen so frequently now that there will not be options out there for others if they've gone through them all. Like Dr. Druker told me two years ago, he was glad we stuck with the Gleevec because I still have MANY options out there in case Gleevec stops working for me. This gives me a very soft cloud to rest on everyday. Hugs, Susan Rosenthal Miami, Florida Ex on January ..rvb Sent from my iPad > On May 28, 2015, at 6:22 AM, cmlhope@googlegroups.com wrote: > > > cmlhope@googlegroups.com Google Groups > Topic digest > View all topics > A bit of good news today - 4 Updates > Today's Doctor visit - 3 Updates > A bit of good news today > sherri swanson <swanson.sherri...@gmail.com>: May 27 02:04PM -0500 > > Hi Everyone! > > In the mist of all the bad news I've been getting lately, I got some good > news this afternoon. My Onc called me to tell me that my BCR/ABL was > undetectable. So with that that good news still ringing in my ears, I went > for walk. AS I was walking it started to rain. I just didn't care. I > continued my walk like it was a sunny day and 85 degrees. I really needed > that good news. > > L'chaim > > Sherri > Icandoallttc <icandoall...@aol.com>: May 27 04:13PM -0400 > > Great news Richard and Sherri. You are truly cml warriors!! Keep the faith. > > Prayers & Blessings Jeanie 🐟🐟18,s > Dx 1/2004 > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > > Marty Gartenberg <wa2...@gmail.com>: May 27 06:57PM -0400 > > Sherri > > PCRU!!!!! EXCELENT!!!! > > 18's for sure. > > Marty[?] You need a great big hug! > > On Wed, May 27, 2015 at 3:04 PM, sherri swanson <swanson.sherri...@gmail.com > Richard H <rbhuffm...@gmail.com>: May 27 08:51PM -0700 > > Great News. Toy deserve it. Someplace in my gospel collection is a song > called "Steppin Out on the Clouds" .. Keep thinking how great it is to be > able go "Dancing in the Rain" and watch your energy grow. > > 18's > > Richard H.. > > On Wednesday, May 27, 2015 at 2:04:48 PM UTC-5, Mosey wrote: > > Back to top > Today's Doctor visit > Marty Gartenberg <wa2...@gmail.com>: May 27 09:37AM -0400 > > Richard, I'm not going to be polite so here it is. YOU ARE KICKING *ASS*. > Yea!!! > > So you now deserve this poem. > > EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF > CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN > YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET > (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. > > WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF > MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING > INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU > THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. > > EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE > BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE > SUCCESSFUL OUTCOME... > > FOCUS... > > 18's, > > Marty > > margoo...@aol.com: May 27 12:42PM -0400 > > Congratulations, Richard. Great news! > > > > -----Original Message----- > From: Richard H <rbhuffm...@gmail.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Wed, May 27, 2015 12:34 am > Subject: [CMLHope] Today's Doctor visit > > > > > I received my ABL-BCR results and I had another CBC before we met. My ABL-BCR > has decreased form 1.17 to .6. Great news!!! The Hemoglobin was up from 11 on > Friday to 11.8 today. So with those great results I will now go into > monitoring mood on a weekly basis until I get my next ABL-BCR in Aug. The ONC > was in awe of the results since we reduced the Gleevec to 300mg and I > reminded him that anytime I tried to convince he to do it him just wasn't > comfortable about .making it happen. > > > > > God is good and remember to keep the faith especially when those dark times > are trying to take over. > > > > > Richard H. > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > Richard H <rbhuffm...@gmail.com>: May 27 08:44PM -0700 > > I know I am and I'm lovin every minute of it. Life is so much more fun > when you are winning. > > Richard H. > > On Wednesday, May 27, 2015 at 8:37:57 AM UTC-5, wa2yyx wrote: > > Back to top > You received this digest because you're subscribed to updates for this group. > You can change your settings on the group membership page. > To unsubscribe from this group and stop receiving emails from it send an > email to cmlhope+unsubscr...@googlegroups.com. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
