Thanks Susan. Yes I will continue to have an ABL-BCR every 3 months, and CBC's weekly for the next 4 months. Since this is for my VA ONC, I can not change the schedule until after my visit in June.
Richard H. On Thursday, May 28, 2015 at 8:07:04 AM UTC-5, educatorsusan wrote: > Richard: > > Awesome news! Please make sure that you're monitored every three months. > I've been on 250 mg since 2008...monitored PCR and PK testing every three > months by Dr. Druker. I'm visiting with him in July. I think he will > further reduce me to 200mg since I'm still have eye bleeds, eye swelling, > cramping has been okay but not great, some edema in my ankles, among the > many side effects. But, hey, I'm alive and have 4 grandchildren now!!! > > Marty, I'm so glad you are aiming to continue to have better health > everyday! > > Sherri, that's VERY exciting news about your PCR. Dancing in the rain is > a great spirit...means nothing is going to phase you when you're "flying > high"! > > I just got a reminder today that Zavie's birthday is on June 4th. A flood > of great memories and sad ones flew in my face. I miss him terribly. > Zavie ALWAYS gave us hope when we thought here was not any hope. In 2003, > I emailed him once I began Gleevec. I explained that I had a low grade > temperature. He said that I was not supposed to have a temperature. But I > did and it was 100.5 annoyingly. I guess I should have known from that day > forward my journey would be much different than anyone else's but we did > not know this until 6 months later. Zavie learned many new things from me > and I learned a lot from Zavie. > > It's an amazing journey because Dr. Druker also learned a lot of things > about me and my Gleevec journey. I am still on Gleevec and still very much > alive and just take each day as a new day learning to solve "problems" as > they appear, when they appear and if they appear. > > The irony is that there are new TKIs out there and doctors nowadays will > switch a patient immediately. It is Dr, Druker's and my thoughts that if > the switches happen so frequently now that there will not be options out > there for others if they've gone through them all. Like Dr. Druker told me > two years ago, he was glad we stuck with the Gleevec because I still have > MANY options out there in case Gleevec stops working for me. This gives me > a very soft cloud to rest on everyday. > > Hugs, > Susan Rosenthal > Miami, Florida > Ex on January ..rvb > Sent from my iPad > > On May 28, 2015, at 6:22 AM, cml...@googlegroups.com <javascript:> wrote: > > cmlhope@googlegroups.com > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> > Google > Groups > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email/#!overview> > > Topic digest > View all topics > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> > > > - A bit of good news today > <#3D95EC7D-ABBD-47F8-B363-93AEEAEC3918@aol.com_group_thread_0> - 4 > Updates > - Today's Doctor visit > <#3D95EC7D-ABBD-47F8-B363-93AEEAEC3918@aol.com_group_thread_1> - 3 > Updates > > A bit of good news today > <http://groups.google.com/group/cmlhope/t/7b2c58d997804447?utm_source=digest&utm_medium=email> > > sherri swanson <swanson....@gmail.com <javascript:>>: May 27 02:04PM > -0500 > > Hi Everyone! > > In the mist of all the bad news I've been getting lately, I got some good > news this afternoon. My Onc called me to tell me that my BCR/ABL was > undetectable. So with that that good news still ringing in my ears, I went > for walk. AS I was walking it started to rain. I just didn't care. I > continued my walk like it was a sunny day and 85 degrees. I really needed > that good news. > > L'chaim > > Sherri > Icandoallttc <icando...@aol.com <javascript:>>: May 27 04:13PM -0400 > > Great news Richard and Sherri. You are truly cml warriors!! Keep the > faith. > > Prayers & Blessings Jeanie 🐟🐟18,s > Dx 1/2004 > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > > Marty Gartenberg <wa2...@gmail.com <javascript:>>: May 27 06:57PM -0400 > > Sherri > > PCRU!!!!! EXCELENT!!!! > > 18's for sure. > > Marty[?] You need a great big hug! > > On Wed, May 27, 2015 at 3:04 PM, sherri swanson <swanson....@gmail.com > <javascript:> > Richard H <rbhuf...@gmail.com <javascript:>>: May 27 08:51PM -0700 > > Great News. Toy deserve it. Someplace in my gospel collection is a song > called "Steppin Out on the Clouds" .. Keep thinking how great it is to be > able go "Dancing in the Rain" and watch your energy grow. > > 18's > > Richard H.. > > On Wednesday, May 27, 2015 at 2:04:48 PM UTC-5, Mosey wrote: > > Back to top <#3D95EC7D-ABBD-47F8-B363-93AEEAEC3918@aol.com_digest_top> > Today's Doctor visit > <http://groups.google.com/group/cmlhope/t/89a131e91c7d2d42?utm_source=digest&utm_medium=email> > > Marty Gartenberg <wa2...@gmail.com <javascript:>>: May 27 09:37AM -0400 > > Richard, I'm not going to be polite so here it is. YOU ARE KICKING *ASS*. > Yea!!! > > So you now deserve this poem. > > EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF > CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN > YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET > (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. > > WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF > MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING > INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU > THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. > > EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE > BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE > SUCCESSFUL OUTCOME... > > FOCUS... > > 18's, > > Marty > > marg...@aol.com <javascript:>: May 27 12:42PM -0400 > > Congratulations, Richard. Great news! > > > > -----Original Message----- > From: Richard H <rbhuf...@gmail.com <javascript:>> > To: cmlhope <cml...@googlegroups.com <javascript:>> > Sent: Wed, May 27, 2015 12:34 am > Subject: [CMLHope] Today's Doctor visit > > > > > I received my ABL-BCR results and I had another CBC before we met. My > ABL-BCR has decreased form 1.17 to .6. Great news!!! The Hemoglobin was up > from 11 on Friday to 11.8 today. So with those great results I will now go > into monitoring mood on a weekly basis until I get my next ABL-BCR in Aug. > The ONC was in awe of the results since we reduced the Gleevec to 300mg and > I reminded him that anytime I tried to convince he to do it him just wasn't > comfortable about .making it happen. > > > > > God is good and remember to keep the faith especially when those dark > times are trying to take over. > > > > > Richard H. > > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to cml...@googlegroups.com <javascript:> > To unsubscribe from this group, send email to > cmlhope-u...@googlegroups.com <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+u...@googlegroups.com <javascript:>. > For more options, visit https://groups.google.com/d/optout. > Richard H <rbhuf...@gmail.com <javascript:>>: May 27 08:44PM -0700 > > I know I am and I'm lovin every minute of it. Life is so much more fun > when you are winning. > > Richard H. > > On Wednesday, May 27, 2015 at 8:37:57 AM UTC-5, wa2yyx wrote: > > Back to top <#3D95EC7D-ABBD-47F8-B363-93AEEAEC3918@aol.com_digest_top> > You received this digest because you're subscribed to updates for this > group. You can change your settings on the group membership page > <https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/join> > . > To unsubscribe from this group and stop receiving emails from it send an > email to cmlhope+u...@googlegroups.com <javascript:>. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
