Hi everyone...haven't been online in a few weeks...lots going on..but wanted to
say hi..and let everyone know I am still here, and think of all of you most
every day..keeping you in my thoughts and prayers.. I see Dr. Druker Thursday,
so flying to Oregon tomorrow morning. Richard, I am hoping good things for
you....sorry to hear the H counts are lower...hope they come back up and
stabilize...sometimes this illness feels like walking a tight rope...it's a
balancing act...one foot in front of the other...
susan..I would love to hear more about what you have been learning???..it may
be in back emails..so I will check..but sounds inspiring and hopeful!! so keep
it up!!!
Warmest regards to all,
18
s
Beth
-----Original Message-----
From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, Jul 20, 2015 10:40 am
Subject: Re: [CMLHope] CBC results 7/17
Great news, Greenie! Sorry to have missed your trip to Chicago this time.
We've all been very busy enjoying our brief time without snow, I guess. Enjoy
summer, dance today! I am going to get so healthy with the new discoveries
I've learned that you all will be blown away!
18's and happiness, (Life and happiness)
Susan F. Zimmerman
-----Original Message-----
From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Sun, Jul 19, 2015 5:00 pm
Subject: Re: [CMLHope] CBC results 7/17
Great news Greenie!!
I is what we all want to hear. Good to hear from you.
Richard I got my hmg up to 14 but it dropped to 13. It had been about 11 for
a long time.
These counts are a battle that's for sure.
Happy Sunday every one.
My Motto: Faith and Pills
Jeanie \uD83D\uDC1F\uD83D\uDC1F18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center
On Jul 19, 2015, at 12:17 AM, Richard H < rbhuffm...@gmail.com> wrote:
Thanks Greenie. It is great to hear that you are at that wonderful
"O". I agree all labs are different but This is the same one week after week.
I should be about there after the last one was .2%. There will be lots of
talking in about 5 weeks, when I see the ONC. My fluid levels stay about 1 all
the time. I have had 5 by-passes (24 years), added a 2 prong pacemaker (about
5 years ago) because scar tissue.
On Saturday, July 18, 2015 at 6:50:33 AM UTC-5, greenie wrote:
After starting Gleevec in Jan. of 2000 my RBC have always been on
the low side 3.64 and the norm on the low side is 4.20 to 5.80. No matter what
lab you go to their counts are always different. By the way when I went to
Chicago the first week in June for my blood work they called me a few days
later to tell me the no cancer cells are showing up which is nice to here. I
am having a problem with fluid down around my feet and ankles so the NP wanted
me to get a Echocardiogram and the test results I'm down loading for you all to
see. Other wise I'm doing find. Everyone take care of yourselfs.
Greenie
Club member 48
In a message dated 7/18/2015 12:27:02 A.M. Eastern Daylight Time,
rbhuf...@gmail.com writes:
After all the weeks working to get my RBC up to 12.3 it has
started dropping again. Two weeks ago it was at 12.0, and today's count was
down to 11.1. So it appears that I will be playing with attempting to keep my
counts up. I will have my next BCR-ABR 2nd week of Aug and get the results 2
weeks later.
Richard H.
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