Dear Marty and Susan,
Just a note to thank you for your posts, and for keeping us informed so we can stay connected, and keep you both in our hearts and prayers. You both have been through sooooo much....yet your attitudes and spirits really are remarkable....I think your faiths seem to play an important role. Thanks for being inspirations to us... happy V day to all...stay warm..where ever you are... warm hug....18's Beth -----Original Message----- From: Marty Gartenberg <wa2...@gmail.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Fri, Feb 12, 2016 8:29 pm Subject: Re: [CMLHope] Info update Susan, Susan what am I to do with you? you are so sweet and for this. I have no doubt that everything will turn out well for you and your family just as is has been doing for me, Shelly and our children. I'm sure that you can imagine everything that I have been through and also so have you. I also see that you are using 18"s as you end all of your posts. Do you know why? Because we and a lot of others share something. Life 18's again. Marty On Fri, Feb 12, 2016 at 1:14 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Dear Marty, So sorry to hear about the mouth sores and low wbc. UGH!!! We are all rooting for you to beat this problem with immunity ASAP. You are not complaining, just stating a reason for us to pray for you! If we don't know about it we can't zero in on it in intercessory prayer. You've got my prayers and I know those of everyone on here who prays to the most High God.. Two trips to Chicago have so far found nothing really wrong with my blood that would cause the stroke. This time they know it's from the bosulif, but waiting for results from the MRA and MRI that also happened. So I'm enjoying time off the TKI, and living life to the fullest every daY. EVERYONE have a wonderful Valentine weekend, please. If ya don't have a sweetie, know that you can treat yourself better than usual for the occasion! (Bubble bath, massage, favorite meal, etc. just for you). The rest of ya try to take good care of your significant other! (Of course don't fall for the media's need to spend lots of money...lol) Heartfelt love and 18's, Susan F. Zimmerman -----Original Message----- From: Marty Gartenberg <wa2...@gmail.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Fri, Feb 12, 2016 4:04 pm Subject: Re: [CMLHope] Info update Ok, let's see what happens at your next blood test. I just had one this morning and sorry to say my WBC was only 1.87 so that puts me having a problem with immunity but I know that it is coming from the CMV virus that I am having so I have to be very careful until the reduced medication starts to work again. In the mean time I have gotten some terrible mouth sores just like I got when I had the bone marrow transplant caused by all of the Chemo and radiation. Something that I will never forget. Believe it or not that was by far the worst part of it. However I just try not to complain about it. And do you know why? I'm still alive today. And now you know what 18's stands for... Life! So I bid you many more 18's. Marty On Fri, Feb 12, 2016 at 5:49 AM, John Barrons <jl...@rogers.com> wrote: Hi My wbc last Tuesday were 4.2, platelets 43 and hemo 103. I will next have a cbc a week this Tuesday. John Sent from my iPad On Feb 12, 2016, at 6:59 AM, Marty Gartenberg <wa2...@gmail.com> wrote: Hi John, What are your WBC now? I know a man who lives in Canada a very long time ago actually more then 35 years ago and he never took any TKI's but he did take something and it did "burn out his Leukemia" but unfortunately he has to have blood transfusions I think every two weeks. He is the longest surviving person in this world. I probably am in there as well logging in going on 27 years after having a bone marrow transplant. Different people react to different things and sometimes some of them defies the logic of these things that are just meant to be. Hey you seem to be one of them👍 Good luck to you! Remember what 18's stands for. Marty On Thu, Feb 11, 2016 at 8:01 AM, <jl...@rogers.com> wrote: I am taking ponatinib like Jeanie in Tampa. I need to take only one pill a week to keep the counts low. the counts do fluctuate from time to time. There does not seem to an answer for the white blood cells to have increased so suddenly. My oncologist did not think it was a change to blast phase. So I go once a week or once every two weeks to check them. John B. On Wednesday, February 10, 2016 11:06 PM, Marty Gartenberg <wa2...@gmail.com> wrote: Hi John, First let me say hello to your wife, and believe me I personally know what she has been going through. Now what I can't understand why your white blood count went over 100,000. And what pill have you been taking? Usually you need to be taking more then 1 pill and that should be every day. So John I am really puzzled. I wish you as well as your wife the very best, because of mainly what you wrote. Yes, life is good. If you have been reading any of my posts I always end them with 18's which is a symbol for life. 18's, Marty On Wed, Feb 10, 2016 at 4:45 PM, John Barrons <jl...@rogers.com> wrote: Hi Jeanie and to all: Well, where do I start. Before last Christmas, I was not feeling very well. My oncologist said if I felt worse go to emergency, which I did on Dec 26. I had pneumonia and as I result my heart was having trouble. In addition, my white blood count went over 100,000. I was in hospital until Jan 16 when I was transferred to a rehab centre to gain back some strength. I arrived back at home last Saturday, so glad to be home I can't begin to say. All is well as far as the things that were wrong. Mind you I have to gain a lot of weight back. The leukemia is back to normal and I am on 1 pill per week. That was along time to be away and I was difficult for my wife also. Life is good John B Sent from my iPad -- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to mailto:cmlhope%2bunsubscr...@googlegroups.com. 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