Dear Kate,
Sorry it has taken a a little while for me to write to you, but I want to welcome you to our group....along with all the others here, it is a very special place to give and receive support...so do stay close, and hopefully, we can all continue to learn from one another...regarding your question..I was diagnosed at 48, and several others here are younger than me, so I am not sure if your skin conditions are related to age verses medication side effects or/ and toxicity...I know that sometimes changing doses helped as long as CML is managed well...also, sometimes, if it is in response to a new medication uptake it can be an allergic response, or even an auto immune response..which sometimes is helped with short term steroids..of course they can cause their own side effects..as it is medication induced, the rashes, raised bumps, even large red raised look like acne but are not...areas, are a part of the side effect profiles of several of the cml meds...I would keep working with your doc around this, don't hesitate to ask questions, like has he or she ever seen this before with gleevec etc...??Has it been successfully been treated on others???with what??? Take care, my best, 18 s Beth -----Original Message----- From: kathy walls <cand...@originalsbykate.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Tue, Mar 29, 2016 12:42 pm Subject: Re: [CMLHope] To Susan Zimmerman Hi all, I am real new to the CML world only 14 months out from diagnosis. I have learned a lot from reading posts here. It's been helpful. My dr is a CML dr and I've had very good results medicine wise but he has no answers for side effects.... Specially bad acne break outs. All he says it's because I'm on the young side to have developed CML. I'm almost 57. Been seeing a dermatologist but results have been minimal. Anyone out there got any suggestions? I'm taking 200mg daily of gleevec. Was on 400 of tasigna which was hell on earth. Anything would be helpful. 18's Kate Sent from my iPhone On Mar 28, 2016, at 9:51 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Marcie, So glad the gall bladder settled down. I give our God ALL the credit for that! So sorry to hear about your husband's issues as well. Is he doing ok now? Not sposed to take turns at the hospital. How will you ever get in a vacation? Blessings at Passover time. Love, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Saturday, March 26, 2016 'Marcie Goodman' via CMLHope <cmlhope@googlegroups.com> wrote: Thanks, Susan. I missed an appointment for blood labs because my husband was in the hospital and having complications from his medical issues. No one to blame but myself. The pain on side has gone so at least for now I'm not going to worry about it. I'll be following up this week with my doctor for more labs and tests. So glad you are doing well. This is the season for miracles and I wish you and Roy and the family a happy and very blessed Easter. Marcie Sent from my iPhone On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: So sorry to hear about a hospital stay. These are not places we want to hang out....low red cells does not sound good, but I'm sure you have great docs. Was that low a gradual thing or quick? Seems they should or could have caught it before you bottomed out if it was gradual. I sure hope it turns out the gallbladder is fine. He still heals today so I'll pray! You could have gotten time off work in an easier way, I'm sure. Hope you gets lots of extra tlc and consider this part of it!!! You are special to me and many others on here! Keep us updated!!! 18's and fight on, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope <cmlhope@googlegroups.com> wrote: Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally! Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> wrote: Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causes....nothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! Hope all is well with you! Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope <cmlhope@googlegroups.com> wrote: Susan: Are you able to have an appointment with Dr. Druker in Portland, Oregon? At least email him Hugs, Susan Rosenthal Have a wonderful day -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. 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