Hi After 14 years on Glivec and being in deep remision 5MR i stopped treatment more than 3 years ago. Did monthly PCR for 1 year and now every 2-3 month. Feeling great. No zombi eyes, less cramps and living normal life. Best Giora
נשלח מה-iPhone שלי ב-5 באוג׳ 2017, בשעה 20:59, 'Holly' via CMLHope <cmlhope@googlegroups.com> כתב/ה: > After 12 years on Gleevec(I was in the first trials at Siteman cancer center) > I switched to Tasigna and all of those symptoms you described went away and > I'm still molecularly cancer free. Maybe you should talk to your doctor about > switching meds. Made a world of difference for me. > Diagnosed: 3/2000 > Gleevec: 10/2000 > Remission: 1/2001 > > Sent from my iPhone > >> On Aug 5, 2017, at 12:18 PM, Vivi <vkrei...@gmail.com> wrote: >> >> After seventeen years on Gleevec, and considered "in remission," my >> oncologist asked me if I would like to stop taking Gleevec. >> At first glance, this sounded spectacular but then she said: >> "you'll have to come in once a month to be tested." >> After deep thought (about twenty seconds), I said, "Talk to me about this >> again in ten years." >> Has anyone else stopped taking Gleevec after years of being "in remission?" >> If so, how's it going? >> What has changed in your life? Have any of the obvious physical >> side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids, >> abdominal fat) retreated or been reversed? >> I'd appreciate any information other CMLers might have. >> Best to all. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
