As you can see everyone has a different result. I have taken breaks from Gleevec several times for three months to 5 1/2 years. I am now on 200mg Gleevec and still detectable. So it is your decision and your ONC is sitting in your corner, be brave and see how long you can go without treatment. Worst case is you will have to start your medicine. Many advances have been made since we were scared almost to death because we have cancer....... On Saturday, August 5, 2017 at 12:18:05 PM UTC-5, Vivi wrote: > > After seventeen years on Gleevec, and considered "in remission," my > oncologist asked me if I would like to stop taking Gleevec. > At first glance, this sounded spectacular but then she said: > "you'll have to come in once a month to be tested." > After deep thought (about twenty seconds), I said, "Talk to me about this > again in ten years." > Has anyone else stopped taking Gleevec after years of being "in > remission?" If so, how's it going? > What has changed in your life? Have any of the obvious physical > side-effects (leg cramps, blood in the whites of your eyes, swollen eyelids, > abdominal fat) retreated or been reversed? > I'd appreciate any information other CMLers might have. > Best to all. >
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