Hi all. This is Jeanie. I have lost remission 4 times and really sick most of the times. I am on my 4 the and probably las tki , Ponatinib. I get mutants. So far not on Ponatinib. Ive been taking Ponatinib for over 2 years. So far so good but worry every time I get blood work. My doctor says if it ain't broke why fix it. It's just up to you. Good luck and prayers. Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center
> On Aug 5, 2017, at 1:18 PM, Vivi <vkrei...@gmail.com> wrote: > > After seventeen years on Gleevec, and considered "in remission," my > oncologist asked me if I would like to stop taking Gleevec. > At first glance, this sounded spectacular but then she said: > "you'll have to come in once a month to be tested." > After deep thought (about twenty seconds), I said, "Talk to me about this > again in ten years." > Has anyone else stopped taking Gleevec after years of being "in remission?" > If so, how's it going? > What has changed in your life? Have any of the obvious physical side-effects > (leg cramps, blood in the whites of your eyes, swollen eyelids, > abdominal fat) retreated or been reversed? > I'd appreciate any information other CMLers might have. > Best to all. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
