Hi perk Yes my onc reduced my Ponatinib as soon as my numbers got good. It’s so hard to know what to do. We are scared to take mds but know we will die if we don’t. Good luck with all.
My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Jul 30, 2018, at 2:24 PM, perk <perkuss...@msn.com> wrote: > > I had the same problem with Sprycel. I went into the hospital thinking they > were going to drain the fluid around my lungs. They took me off of Sprycel > and on Tasigna. They also gave me Lasix to assist in removing the fluid. They > cautioned that I may experience the same problem with Tasigna. I started > taking it every other day instead of everyday and so far, my numbers have > been good. I feel a little tightness in my chest sometimes but I seem to do > better by not taking it everyday. Why did they increase your dosage? I think > they prescribe too much sometimes and you should listen to your own body. > This may not be good advice but it has worked for me. > > Good luck > > Perk in Texas > >> On Saturday, July 28, 2018 at 8:26:52 AM UTC-5, Ragavan wrote: >> I was taking 50mg Dasatinib per day. An year back it was increased to 75mg. >> For the last few months breathing difficulty is keep increasing. I am not >> able to take full breath. It is always half breath. I will discuss with my >> doctor in the coming visit. >> >> Did anybody else face the same problem? How did you handle? Please help. >> >> thanks, >> Ragavan >> >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
